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Lagena
ByersM.prodigy.com Jan
07, 1999 2:16 am
I have been living with a heart valve problem since I was 5 years
old. I had my mitral valve replaced when I was 5. I have heard all
kinds of things that heart patients can take asprin instead of a
high potiency coumadin. Is this true? |
|
Mary
Corbitt mcorbitt@rcipa.com Jan
07, 1999 11:55 am
Home Page: http://www.rcipa.com
I agree with another writer...as I view these letters, I am amazed
at the number of people under the age of 50 struggling with heart
disease. I suppose we are a product of the times. Since I last
wrote, my husband Dan, 46, had yet a 3rd hospitalization. Sat.
before Christmas. More unexplained chest pain that would not go
away until he took 3 nitros. Now he wears a nitro patch everyday.
Terrible headaches. His diabetes continues to run amuck -- highs
then lows. This time the explanation is that the smaller vessels,
that cannot be angioplastied, can simply collapse at times, for no
reason. If Dan were to ignore it, then it could result in heart
damage. This was a big blow because after the stents were put in
initially, we both thought we were on the road to recovery. Two
hospitalizations later we now feel as though our life is on the
edge. He was sitting down to watch the Bills game and clicking
over to the impeachment hearings when this pain occured, more
intense than what he has ever expereinced before. I can't think of
the term for this small vessel condition??? I find that in order
to survive all this, I must stay focused on my three young
children, support of Dan (pushing him to talk), my fulltime job
and the rest of life. It is a daily coping process. |
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Andrea
Evans fpmclure@axionet.com Jan
09, 1999 7:14 am
Hello out there? Is anyone walking in shoes similiar to mine? My
husband is almost 70. He has always been active long walks every
day, healthy eating, no smoking , no drinking, and no history of
heart disease in his family. Yet on Dec. 4,1998, he had a massive
coronary and tripple by-pass surgery and crashed in the ambulance.
He was revived and within 2 hours was on the operating table. He
has made remarkable physical recovery. Two weeks after being
released from hospital, he had a mini stroke. I have been the
disabled one suffering from acute, chronic pain and because of
degenerative spine and arthritis. In one minute I went from the
being cared for and having a more simplified life to accommodate
my disabilities, to the care giver and totally frustrated and
feeling guilty for feeling that way. He now has started driving
the car again and I am sick every time he goes out afraid he will
have another stroke or attack and kill himself or someone else. He
is a doer and has always been on the go...night and day. It is
just 5 weeks since surgery and about 3 since the stroke and aside
from being tired, he just goes and goes. I am exhausted/ It is 4
am and I have slept very little tonight. I have sent for the
heartmates book and trust that it will as for many of you, give me
some idea what to do with these feelings. I am even ashamed to
write these things down but I need to communicate with someone who
has gone through this and find a way to stop waiting "for the
other shoe to drop". When he is out by himself, particularly
after dark, my heart is in my throat. He is a good man who is
doing things for other people who need help but he is not taking
what I consider to be care of himself and giving himself time to
heal before he goes back at his many activities. Our children are
grown and they and their mates are frustrated as I that he just
won't slow down for a couple of months. Please email if you have
any suggestions. I am empty. Thank you for listening/well,
reading. I really am not naturally a whiner but this has thrown me
for a loop. |
|
Steve
AMAmail@aol.com Jan
12, 1999 5:29 pm
Home Page: http://members.aol.com/AMAmail/default.htm
I just wrote this while responing to someone who read my earlier
post on Heartmates. Made me sit back in amazement when I read what
I had written. We take so much of the recovery for granted. I am
living proof that they can do amazing things. When I was on life
support they suggested my wife pull the plug. Last week I spent
four days walking all over Disney in Orlando and wore my kids out.
Anything is possible Steve |
|
Terry
gallemore@erols.com Jan
12, 1999 11:40 pm
Last year my sister had a heart attack at age 50. One third of her
heart is dead. She is wondering if there are any other women out
there who have had heart attacks at a young age as well. She needs
to share. Terry |
|
Sally
Jan 13, 1999 12:23 am
I am a 34 year old female. My paternal grandfather died at the age
of 39 from heart disease. My father had a six way bypass at the
age of 45. His younger sister died of a heart attack at 50 years
of age. My triglycerides were near 1400 nine mos ago and my
treadmills are "slightly" abnormal. With medication, I
am controlling my blood pressure,my cholesterol (now 175) and my
triglycerides are down to 400. My question is - at what point is
it dtermined that I have heart disease? I have not had chest pains
or any syptoms of a heart attack - only lipid problems which can
preceed blockage of the arteries. I have had doctors tell me that
I should not worry because I am a young female. I am seeing a new
cardiologist in a week - what should I make sure to ask to make
sure he takes me seriously? I think I am justly concerned. Any
suggestions? |
|
Brian
kelly@modex.com Jan
18, 1999 6:55 pm
Sally could you please leave your e-mail address? My posting is a
few above, Im 34 and would like to talk to you,I might have some
advice for you.Please e-mail me. |
|
Janie
bmjflint@clandjop.com Jan
21, 1999 12:21 am
Several of you have e-mailed me about the supplements Barry has
been taking. Thought you would like to know that he had blood
tests this week. His HDL cholesterol has risen from being 19-21 up
to 31 on this test. All his other risk factors had been normal
except for this HDL. He takes 4 oz. red wine each day, a handful
of peanuts, and several supplements including folic acid and
Co-Q10. There have been no life style changes necessary, no
cardiac rehab (he was in excellent physical shape, walking 1 mile
per day the week after his MI), and the only medication he has is
one low-dose aspirin a day. So I have to believe that the
supplements, wine, and peanuts are doing what they're supposed to
do. He has had no symptoms of any kind since his heart
attack(August '97), except for tiring a little more easily than he
did before. The doctor said he'd had mild to moderate damage. So
things continue to look good for him. We, too, had been amazed to
find that so many heart patients are in their 40's. We had
certainly not been expecting this. |
|
Chris
Chris@homepageuk.freeserve.co.uk Jan
22, 1999 2:50 pm
Home Page: http://www.homepageuk.freeserve.co.uk
Hello, I have just been told I have unstable angina, I am
interested to hear how anyone else with this complaint has coped
and regained their fitness etc. I am 45 year old Park ranger in
the UK Thank you |
|
Justin
McMillin jcm1110@aol.com Jan
23, 1999 9:48 pm
My name is Justin McMillin and I'm a 27-year-old from Springfield,
Missouri. I found out in October that I have dilated
cardiomyopathy and congestive heart failure. My EF is 15%. It has
kind of crippled my life, not physically as much a mentally. I
have an unbelievable amount of questions, doubts and concerns
running through my head. What I am looking for is as many people
as I can find in my age range (25-35) with this same sort of
thing. Just to talk, try to relate with, try find new avenues of
research....I would also interested in hearing from anyone else
out there that can point me in the direction of more related web
sites, support groups. Thanks, and God bless us all. |
|
Andrea
Evans fpmclure@axionet.com Jan
23, 1999 10:41 pm
Here I am again. Still waiting for my copy of the Heartmates book
and still trying to deal emotionally with my husband's bi-pass (tripple)
and what I consider his "I'm just fine" attitude. I see
him just a month and a half after emergency surgery-after
"coding" in the ambulance already back at his on the run
pace of living. He told me that he will enjoy living, he doesn't
need so many pills and he will keep going or die trying. I
undertand that these decisions are his to make and he is
adjusting, just as I and the rest of the family are but knowing
and coping are not always compatable. I wrote on Jan 9th and
received a wonderfully encourageing letter. Thank you. I read and
re-read the Helpful Hints for Heartmates at the top of the page
and tonight. I focused on #'s 6-7- & 9 . I pray, I read my
Bible, I try to maintain some sort of coping strategies. Tonight
is just a downer and I felt if I could put my thoughts out there,
maybe someone would relate. I think if I were to read and not be
the author of this, I might think the author very selfish.
However, from this spot, I think the author is having a poor
coping day and the sun will shine tomorrow. We still have about 2
more months of doctors and learning the results of the tests he
has and must take. I read the letters above mine and know that
many of you are in much worse positions than mine. Then the guilt
hits. I have been disabled with constant pain and arthritis for
about 10 years. That has its ups and downs as well. When I have a
bad day physically and my husband's recent illness coincide, It is
tough. Sorry to be such a negative writer, but somehow it just
feels better telling someone. I will pray for you. May I ask that
you do the same for me? THank you for reading this. |
|
liz
m10032@hotmail.com Jan
27, 1999 12:40 pm
My husband, who turned 49 in 98, on Nov. 20 started throwing up,
had a slight fever and had the chills. Flu, right? Wrong we found
out on Dec 1 that he had had a massive heart attack. I might add
that on the 23rd I forced him to go to the doctor who informed us
that he thought it was just a hang over from the flu. During that
time, he helped me jump my car twice, changed light bulbs etc with
no evident effect. Needless to say, we have both been in shock. He
has spent from the 1st until the 5th in ICU, had only 10-15% of
his heart working, they had discussed by-pass and transplant.
Unfortunately, the transplant people came in when I was not there
and of course, my husband does not remember much of what happend
in the hospital, let alone what the doctors said to him. On our
last visit to the doctor we were informed that we were not looking
at either by-pass or transplant at this time and that he was doing
well. The strange thing is that he had evidentually had two if not
three massive heart attacks, one at least 6 mos. old as that the
artries are starting to grow back. (Did that make sense). He is
still not back to work though we keep hoping that he will be soon.
We have been blessed in that his heart attacks were not fatel, but
I wish more people knew that men can also have "silent"
heart attacks. The 17th is when we ask the hard questions, are we
not looking at by-pass because it would be futile? (sp). I am also
wondering how Patricia8 is doing, I have not seen anything from
her since July? Does anyone know? I wish to thank Steve for his
support, just reading about others who have make good, if not
full, recovery helps. We can and will all get through this, maybe
not as we wanted or wished, but we will make it. "Man
proposes, God Disposes". |
|
Marseda
katie@cvzoom.net Jan
29, 1999 2:44 pm
My husband had bypass surgery on 01-12-99. He is 44 years old. He
has done remarkably well from the surgery. I am very proud of how
he has been handling the whole thing. I have noticed over the
course of the past few days, however, that he seems to be getting
depressed. He gets alot of rest during the day, but at night he
can't sleep. He said he "feels like he's going to jump out of
his own skin." Is there anybody out there who had difficulty
sleeping at night and was it determined to be associated to the
depression? Help! |
|
Patsy
p.jhulan@home.com Jan
31, 1999 8:42 pm
I was reading some of the messages and just had to write. My
mother, who is 53, has been experiencing problems since June 98.
She has had 6 angiograms, 3 angioplasties with results of 5
coronary stents. She is still experiencing alot of pain as well as
weakness and shortness of breath. She just recently had another
angiogram and was told she wasn't blocked enough for bypass
surgery! Any suggestions or ideas as to what else we could do, she
has went from an active vibrant woman to a cardiac cripple! This
is getting very hard for her, she is depressed, however typically
denies it. She was started on antidepressants but when she found
out what they were... you know the story I'm sure. Any suggestions
would be appreciated, thanks for listening! |
|
Carolyn
Willbrandt carolyn@digitaldictation.com Feb
01, 1999 1:33 pm
My sister is 35 years old and has cardiomyopathy. Her condition
worsened just after Christmas, and they implanted the HeartMate VE
LVAS device (which is a heart assist device) to keep her going
until she is strong enough to go through the transplant itself.
Through my many hospital visits, I have met other patients and
families going through this very experience. I would love to hear
from others who have been through (or are now going through)
similar experiences. |
|
Sue
fpmclure@axionet.com Feb
03, 1999 5:03 pm
Can anyone tell me if during a major heart attack (requiring
emergency bi-pass) is there likely to be some brain damage from
crashing in the ambulance on the way to the hospital?. Is sleeping
a lot a sign of depression after such a near death experience? I
feel if I can just get some knowledge , I am better equipped to
deal with the day to day. thanks |
|
Ralph
Bouldin justawhey@earthlink.net Feb
10, 1999 6:18 pm
I have been fighting this heart thing by my self since April 1996
My wife woke up one morning with severe pain in her back
radiaaating out to her arms....We were told she had an aortic
anrurism I hope that's spelled right. for which she under went
surgery. She still was not without pain. A year and a half later
after another CT scan were told that she has been living with
another aortic anourism which we knew nothing about this one is
behind the heart and is goes upto the area of the aortic arch and
the subclavian artery the aneurism is now to large for her to be a
canidate for a stent. I feel let down by the medical community. If
we had been told about this secord aneurism earlier mybe something
could have been done. My wife is 63 Were finicially burdened I
make only enough to make it from payday to payday without these
additional medical proplems. Before all this happened my wife was
a picture of health looking forward to spending the rest of my
life with my mate of 20 years. Now if I wake up in the morning I
feel really blessed if she wakes up to. Does anyone know where I
might go for help? |
|
Hyla
Wallace hyla@netcom.ca Feb
11, 1999 6:21 am
There is nothing more that can be done for my husband and so he
feels he is coming home "to die". He may be right - I
don't know. I want him home, but I don't. I'm just really scared.
I have no more ideas about our tomorrows. I don't know if we can
do this. Likely we'll make it, but both of us are in the
"twilight zone". |
|
Andrea
Evans fpmclure@axiont.com Feb
14, 1999 6:07 pm
I keep reading these entries every little while and wonder where
people are a month or two down the line. If some of you have time
for an update, it would be so helpful for some of us who are
relatively new in this club of ours. Since my last entry, my
husband is learning to pace himself a little better and with the
help of the "Heartmates" book I am learning to back off
a bit and leave him more responsible for his own circumstances. I
still help when he needs it and keep his pills available in little
boxes but I don't follow him around to make sure he takes them. I
believe that this approach has taken a great weight off my
shoulders and given him back some of the independence I was
stealing from him. OOps! he just announced that he is off to the
store and I had to ask if he remembered to take the cell
phone....well, we are both in the healing process. I can't thank
those of you enough, who have written and the encouragement from
the book. My kids call it my heart Bible. Perhaps that is just
what it is. There is so much help out there, thank you to all who
are responsible. Andrea |
|
Marcella
malt@bc.sympatico.ca Feb
16, 1999 7:38 pm
Hello I am a nursing student in my last year of a BSN program.I am
in the process of learning program planning,my objective is to
start a support group for spouses/partners of cardiac patients. I
am looking to for journal articles or evidence based research on
this topic. Any correspondence would be greatly appreciated. Thank
You Marcella |
|
Ralph
Bouldin justawhey@earthlink.net Feb
18, 1999 3:47 am
I'm in need of a caradic surgeon in the Houston, TX USA area. One
that dosent mind doing bloodless sugery on Jehovah's Witnesses. My
wife is in need of A thoratic anurism repair. If any one can help
please e-mail me! |
|
Jeanen
jhubbard@transcrypt.com Feb
18, 1999 9:28 am
My boyfriend of 3 years had a mild heart attack 3 weeks ago. He
had triple by-pass 9 years ago. It seems like I am in fear all the
time of when it will happen again. I think he is still smoking and
I don't think he is eating as good as he should be. |
|
Ralph
Bouldin justawhey@earthlink.net
Feb 19, 1999 7:06 pm
My wife had a aortic aneurism repair in April 96. Has been in
constant pain ever since. Through all this I have learned several
things. 1.) That a good diet high in protein and low in
carbohydrates is essential. 2.) A vitamin regement including Omega
3, COQ10, Vitamin E is extreamly benefical. 3.) The need to quit
smoking is imparative. I hope this information helps. |
|
Lynne
cgleason@midusa.net Feb
24, 1999 1:33 pm
Our lives turned upside down in August of 1997. My seemingly
healthy 50 year old husband suffered an anterior MI and had
angioplasty and 2 stints. Our lives seemed to be on the way back
to normal when during a stress thialium test he suffered another
anterior MI in the area where one of the stints had been put in
three months to the day of the last attack. We waited until Dec.
21st and had another heart cath done and it showed the area that
had been opened up just a little over a month before was already
50% blocked again with the same scar tissue that shut it down
before. The next morning they did 5 bypasses on him and then our
seemingly normal lives began to deteroriate. He returned to work
in March of 98 and our lives have notbeen thesame. He says he
feels fine and just maybe doesn't have the stamina that he had
before but by his actions you would think he is at least 20 years
older. He has absolutely no interest in me anymore. We live like
brother and sister. He takes Lopresser and Accupril for his blood
pressure we have elimated the medications and put them back on
because of the rollercoaster blood pressure. But through it all
our lives don't change. He continues to mope around and act like
an old man. I am not yet 50 and hope that our lives don't stay
this way. Does anyone have any suggestions and how to get at least
part of our lives back. Sometimes I just feel like we saved the
heart and killed the man. This is not the man I married!!! |
|
David
Scott davidlscott@nortexinfo.net Feb
26, 1999 6:18 pm
Home Page: http://www.nortexinfo.net
Today is day 37 following heart bypass which resulted in 5
bypasses. Actually I feel worse now than I did shortly after the
surgery. I am age 51. The leg from which the vein was harvested
has begun to drain near the ankle and my foot is swollen. Walking
is near impossible. I will see my doctor in 5 days, meanwhile I am
told to treat the wound with Mercurochrome and elevate my leg.
When will my leg heal? Have any of you experienced similar
difficulties? |
|
Diane
Rubin Dmtar@aol.com Feb
28, 1999 7:12 am
Home Page: Howell,
New Jersey
My husband has experienced serious heart problems for 12 years and
had a IDC with pacemaker installed in November, 1998. This week
the unit fired 5 times and my husband is again in the hospital -
doing well but very scared. I am looking for a support group to
help both of us cope.
Rhoda
Levin heartmates@outtech.com
Mar 20, 1999 04:04 pm
Hello
everyone—We have had a terrible glitch in cyberspace, and for
many of you there has been interrupted service, not being able to
get to our site or this page off and on since mid- February. It
was not recognized until March 17 -- IT IS ALL FIXED AS OF NOW,
APRIL 26.
If you tried to
submit a message during March, it is possible that we will never
be able to retrieve it—PLEASE COME ON AGAIN, AND WRITE YOUR
MESSAGE. This is the first time since we began this page in 1997
(read our archives—go to the top of this page) that we have had
a problem and we hope that we will never again be a disappointment
to the support you’ve had reading about and writing to and from
other heartmates. My best to each of you for a full recovery for
you, your loved patient, and all of your family. We plan to
continue to serve your needs for support, connection and being
heard deep into the new millennium. Sincerely, Rhoda Levin P.S. I
have a new name:
Rachael A.
Freed
P.P.S. I have
two new grandchildren: on January 23 Samuel Joseph was born to my
daughter and son-in-law, and on March 5 Lily Josephine was born to
my son and daughter-in-law .. I am celebrating the blessings of my
life.
Nan
Ganz nan02nd@hotmail.com
or nganz@clark.net Mar 22,
1999 12:19 pm
I was glad to
see Rhoda’s entry explaining what’s been going on, as I am one
who had trouble accessing this web page and one whose entry must
have gone astray. I was getting very frustrated trying to find
some support, and beig unable to do so. My husband, Steve, is 54,
and about two weeks before labor day of this year experienced a
series of "atypical" cardiac experiences. He is a Type
II diabetic, and his experience started with an attack of
hypoglycemia. He had a doctor appointment on a monday afternoon
about two weeks before labor day, and had had breakfast, lunch,
and an apple before he went. He got a good report from the doctor,
left the office, got in his car-----and left the planet. About
6:30 that evening, I got a call from an emergency medical facility
in Bowie, Maryland (we live in Arnold—not far from Annapolis),
saying that my husband was there, that he’d been brought in from
I-197, where he’d gone up on the median but had not hit a pole,
and that he was very disoriented. His blood sugar when they
brought him in was around 43. I answered what questions I could
over the phone, and then got a friend to drive my son and me to
the medical facility. Steve had no idea why he’d headed in that
direction, nor how he’d even gotten there—he still can’t
answer those things. They told me that he’d have to be
hospitalized for 48 hours to monitor his blood sugar to make sure
there was no recurrence of the hypoglycemia. After a number of
phone calls to our doctor, a geriatrician with privileges at a
hospital in Glen Burnie, he was transferred to that hospital. When
I went to visit him the next afternoon, he was tired, and I told
him to go ahead and nap, and I’d come back later. When I came
back around dinner time, he told me he was being discharged.
He’d been there less than 24 hours, but said that the doctor who
examined him said he was the healthiest patiend he (not our
doctor) had seen all day. We signed the discharge papers, and I
took him home. That night, every time he tried to lay down and go
to sleep, he’d start coughing and had to sit up again to catch
his breath. He wouldn’t let me call anyone at that point, but
when, the next morning, he calmly explained that the reason he’d
had trouble sleeping was that there were these birds in his chest
and he was afraid he’d crush them if he laid down, I got on the
phone to the doctor, as I’d intended to anyway. I was told she
wouldn’t be in her office until 1:00 that afternoon, but that
they would have her call us in the meantime. I checked back with
the office hourly, but we heard nothing from the doctor (her
office person didn’t put a 911 on the page, so they didn’t
think there was an emergency), so at 1:00 we showed up at the
doctor’s office. I wanted to know why my husband had been
discharged early (his doctor wasn’t even aware he’d been
discharged—she was planning to visit him that day), and what all
the respiratory distress was about. Our doctor examined him, and
explained that one of his medications, Glucophage, doesn’t
always dissolve in the system at the same rate, and that it must
have backed up in his system, causing his sugar to drop; also that
all the fluids he was given to brig his sugar back up probably
caused the respiratory problems. Then she said that, as long as we
were there, she wanted to do an EKG since he hadn’t had one for
awhile, and send him for a chest x-ray to see what was happening.
After the EKG, she said we were going to alternate plan B—the
paramedics had been called to transport him to the closest
hospital (in Annapolis, this time) as his EKG showed "changes
consistent with a small heart attack". I cancelled my therapy
session for that afternoon, and headed for the hospital to meet
him in the ER, where we also met his cardiologist. It was decided
that cardiac catheterization would be done the next day (Thursday)
to determine the extent of the damage, and the next step in
treating him. It was then that it was explained to us that
diabetes can mask the symptoms of a heart attack. The procedure
was done Thursday morning, and it was found that he had one artery
which was 70% occluded. The cardiologist recommended moving him to
Johns Hopkins for a balloon angioplasty to be done the next day.
He was moved that afternoon, while a friend helped me arranged to
have Steve’s car towed in for repairs. Another friend drove my
son and me to Johns Hopkins on Friday morning (the fourth medical
facility in three counties in five days), and we arrived just
before the balloon angioplasty was completed. The doctor reported
that everything was fine, the artery was cleared out, a stent was
in place, and Steve could go home the next afternoon. Still
another friend took me down to bring him home on Saturday, and he
seemed just fine. He rested at home, and visited a little with
some friends who stopped by. When we went to bed that night, he
started again with the coughing and shortness of breath! This
time, his chest heaved like he’d run a 10K race. Less than 12
hours after his return home, I was on the phone to 911, and he was
returned to the hospital in Annapolis, where he was diagnosed with
pneumonia. This time, he stayed for about 5 days, until they were
fairly sure his chest was clear and the infection was gone. He was
home for about three weeks after that, and as he was still
coughing and having trouble drawing a deep breath, he decided to
check back with his cardiologist on Rosh Hashana. At 4:00 that
afternoon, I got a call at work.."You can come home now. I
have to go back to the hospital." The diagnosis that time was
congestive heart failure, and he was started on enough Lasix for
several race horses -- 80mg b.i.d.. After the first injection in
the ER, he filled an entire urinal, and he lost a total of 11 lbs.
while in the hospital for that stay, which was the longest, and
thankfully, the last of the series. It really was quite a fun
fall! He’s been improving physically slowly, but is still very
tired and dad has become an acronym for denial, avoidance,
depression. We did go on a cruise in February, which he seemed to
enjoy, but even he admitted to being depressed before we went
away. He wouldn’t accept any medication for it though. He keeps
trying to convince himself that his problem has been fixed and is
all behind him now, and he doesn’t really want to talk about it
at all. It’s been difficult for me to deal with being kind of
left out on my own to deal with all of this, and the net result is
that my colitis seems to have come back after 17 years of being in
remission. I have been reading the HeartMates book, and decided to
try this route to find someone to correspond with for some
support. I’m very glad that the glitch has been sorted out, and
perhaps now I will hear something from someone. For awhile, it
seemed like anything I was trying to do to help myself was
resulting in a dead end, and that was incredibly frustrating and
depressing. Things are beginning to turn around a little bit now.
I still haven’t really found a support group in our area (our
insurance didn’t cover the cardiac rehab program at our local
hospital—neither of our employers thought to negotiate for that
coverage), so any leads would be greatly appreciated. I’ll keep
checking the entries in this space, too, to see what others have
to say. Thanks for listening, and I hope that this time, my entry
gets through.
Nan
Ganz nganz@clark.net
Mar 27, 1999 06:56 pm
I have recently
come across an interesting book from the library, and thought
others might find it helpful too. It is called "Heart Illness
and Intimacy How Caring Relationships Aid Recovery" by Wayne
M. Sotile, Ph.D. I couldn’t locate an e-mail address or website
for him, but I would be curious to know if anyone else had read
this book and what they think/thought about it.
graham
grahamp@trump.net.au Apr
05, 1999 04:06am
Hi.I am 39 I
have had cardiomyopathy since i was 22 with a 25% impulse
fraction.I have been basically well but in recent times have been
getting chest infections,high temp,fatigue etc.Iwould welcome any
comments. Thank you.
Penny
stash@islandnet.com Apr
07, 1999 12:05 am
Home Page: http://www.islandnet.com/`{stash}
I have a 6 year
old son with complex congenital heart defects. He has had a fontan
procedure to repair what they could. He gets very bad headaches
with exercise. The pediatric cardiologist has recently given the
ok for oxygen to be administered when he gets a headache which is
usually everyday. If any one has every heard of a similar
situation I would like to hear from you.
|
| Name: |
Bonnie |
| E-Mail: |
BAldr10707@AOL.com |
| Date: |
04/10/99
12:00 |
| Comments: |
Hi,
I was a cardiac RN who so much loved working on the telemetry
unit. In Aug. 1996 I was diagnosed with progressive coronary
artery disease all of a sudden. In 96-97 I had 5 angioplasties,
double bypass and a MI. This last year has been good (at least I
was out of the hospital) but I do not have much activity level.
Today, I am facing blocked arteries again, but my what seems to
bother me the most is facing death and how it will come. Because
of the severe angina I have received nerve blocks every 4 months,
so I will feel no pain; it will just happen. I had a patient tell
me that everyone can be ready to die, just nobody wants to die
today. Since his death I can know so much what he was talking
about. I am interested in the new procedure of lasering holes in
the heart muscle through a sheath through the femoral. |
|
|
| Name: |
Bonnie |
| E-Mail: |
BAldr10707@AOL.com |
| Date: |
04/10/99
12:00 |
| Comments: |
Hello,
I was a cardiac RN who so much loved working on the telemetry unit
at the local hospital. In Aug. 1996 I was diagnosed with
progressive coronary artery disease, having 5 angioplasties,
double bypass and a MI in one year. This past year has been
better, staying out of the hospital. I have a limited activity
tolerance and receive nerve blocks every 4 months for angina. Of
the 3 main arteries, most are not functioning. In fact, peripheral
arteries are supplying my heart. I am now interested in the laser
procedure of applying holes in the heart muscle through the sheath
inserted in the femoral. Also I had a patient tell me that
everyone is ready to die, it's just nobody wants to die today. I
understand what he meant. This has been my biggest anxiety. I just
lost two good friends to sudden cardiac death and one was only 48.
I have a fear that my death will come unexpected and this is scary
to me and my two children. |
|
|
| Name: |
Nan
Ganz |
| E-Mail: |
nganz@clark.net
or nan02nd@hotmail.com |
| Date: |
04/12/99
12:00 |
| Comments: |
This
is the first time I haven't seen my previous entries on this page.
I do have one more author to share with the readers. name is
Deborah Tannen, and she was brought to my attention my my son, who
read some of her work in one of his college classes. She writes
about the differences in communication and thinking processes
between men and women, and she makes alot of sense. I have also
been finding many interesting and helpful things in Dr. Wayne
Sotile's book "Heart Illness and Intimacy: How Caring
Relationships Aid Recovery." I'd be curious to know if anyone
else has found these helpful. Also, what experiences others have
had with being on and taken off of Digoxin, as is currently
happening to my husband. I'll check back again soon. |
|
|
| Name: |
Regina
Sun |
| E-Mail: |
sungirl@nwu.edu |
| Date: |
04/25/99
12:00 |
| Comments: |
Hi,
I'm a medical student at Northwestern University and our class is
doing a project on Congestive Heart Failure. I am particularly
interested in the affects of CHF on family members of the patient.
If anyone would like to share their experiences with me. I would
greatly appreciate it. Thank you. |
|
|
| Name: |
Lynne |
| E-Mail: |
cgleason@midusa.net |
| Date: |
04/30/99
12:00 |
| Comments: |
I to
am glad to see the page up and running again. I missed it while it
was having its problems. I am happy to report that our lives seem
to be turning the corner. Thanks to some medication changes my
husband seems to be getting back to his old self again. He now has
more energy back and is beginning to seem more and more each day
like the man I married. Although he has continued to have a
different outlook on life. He lives more for each day and does not
look down the road anymore. He now wants to plan things that we
can do together. It is so nice to spend time with him now.
Hopefully this is only the beginning of us finally starting to put
our lives back together. I am not foolish enough to believe that
our lives will ever by "normal" again, I know we will
always live in the "cardiac zone" but it is pleasant to
see that he is slowly coming back to life. I guess he needed as
much time as I have to realize that there is life after cardiac
episodes. I would enjoy hearing from some of you to see if we have
similarities in our lives. As far as I am concerned this website
has been a goldmine for my sanity. |
|
|
| Name: |
Cheryl
Rogers |
| E-Mail: |
rcserv@mindspring.com |
| Date: |
04/30/99
12:00 |
| Comments: |
My
mom is recovering from a triple by-pass. It has been 8 weeks and
she is doing well physically but she is having problems with her
memory. She is forgetting simple things and getting facts turned
around. Someone told me that after surgery, short term (and some
long term) memory is affected. Has anyone out there seen this
after open heart surgery? |
|
|
| Name: |
ANDREA
EVANS |
| E-Mail: |
fpmclure@axionet.com |
| Date: |
05/10/99
12:00 |
| Comments: |
So
glad you're back. Good to hear that Lynn and her mate are moving
ahead. Our crisis was 5 months ago. emergency tripple by-pass and
small stroke following. conplete arrest in the ambulance for over
5 minutes. It has made several permanent changes for us. Like the
short-term memory problem and the awful coughing. some days he is
so angry and just bites my head off for no reason more than his
own frustration. Not like before but we have more good than bad
days. He goes and goes like there is no tomorrow and indeed there
may not be.. But every day is a gift and we are grateful for each
one. He threatens to quit all of his meds and that scares me. So I
call our three grown kids and we confront him and he is back on
track for awhile. Had a horrible fright that turned out to be
nothing but it reminded me that my mental acceptance of this heart
disease lifestyle has been a greater strain emotionally and
mentally than I realized. We have 2 appts. with the cardio. for
stress and ultra tests in early June. He had gone fishing today
and I answered the phone and the voice on the other end said, Mrs.
Evans ? "speaking" , "This is the caridiac unit of
the-----hospital, I screeched into the phone what is wromg.????????
It was simply a query about the upcoming appointments but with a
leaking metrol valve ( no operation possible because of the recent
by-passes) and on a scale of 1>10 he is rated a 3, I guess I
still wait for the other shoe to drop and I thought I was coping
well. And most of the time I am but .........every now and then
the old cold fear just grips inside. I rely heavily on prayer and
rejoice that our children are always a phone call away. I don't
call them about every little thing but it is such a comfort to
have them ready to move if I need them. I read this little saying
and it helps me. YESTERDAY IS HISTORY, TOMORROW IS MYSTERY, TODAY
IS A GIFT.....THAT IS WHY IT IS CALLED THE PRESENT. GOD BLESS YOU
ALL. STAY STRONG. |
|
|
| Name: |
Heartmates
Inc |
| E-Mail: |
heartmates@outtech.com |
| Date: |
05/28/99
12:00 |
| Comments: |
This
being Memorial Day Weekend, I just wanted to send a message from
Heartmates Inc saying to everyone, that we have much to be
thankful for, and that our memories of people or lifestyles lost
or changed can be remembered with a kind of sweetness that allows
us to appreciate what we have had, and at the same tim4e allows us
to live now, in the present, and to be grateful for each precious
day of life we have with those we love. So Happy Memorial Day, and
our hope from Heartmates is that for each of you the day and the
weekend will be full of the present as well as memories of the
past. |
|
|
| Name: |
Diana |
| E-Mail: |
stlpure@aol.com |
| Date: |
06/07/99
12:00 |
| Comments: |
Tomorrow,
my 52 year-old husband of two weeks will undergo quintuple bypass
surgery. Despite losing 50 pounds, quitting smoking, excercising
for 1.5 hours per day for 2 years, and becoming a vegetarian, his
cardiac condition was found to be deteriorating. He's fit and
optimistic, and such a hot dog that he's certain he'll be "up
and running" in no time. I desperately need someone to
confirm that these interventions are a good idea and that there is
indeed hope for improvement (he looks so good, you wouldn't
believe he needed any form of cardiac treatment)! PLEASE KEEP THE
SAD & TRAGIC STORIES TO YOURSELF ("Yep, my husband's
chest ripped open -- right back up" & "The worst
part is the leg wound!" make me insane!!) Thanks, folks! |
|
|
| Name: |
Gayle |
| E-Mail: |
JJWEALG@AOL |
| Date: |
06/08/99
12:00 |
| Comments: |
My
husband,age 53,had a quad bypass five years ago this August,99. He
has physically recovered with only one baby aspirin a day for
medication. Emotionally,he is angry most of the time. If he gets
upset over anything he dwells on it for days,isolating himself in
the bedroom with the door shut and refuses to talk with me in any
manner. Eventually, in several days time-he comes out of this
"shell" and begins to act like himself. We own a
business and work together daily-although not in close proximity.
During these anger times,he goes to his room when we get home from
work. I have been with this man for 19 years and love him dearly
but he has definitely had personality changes that seem to be
progressing and lasting longer each time he gets upset. Has any
other mate experienced this??I am at my wits end with his
behavior. I am an R.N.although I no longer nurse,I maintain my
license .Does anyone else have a short-circuited mate? Thanks for
your book-you saved my sanity. Gayle |
|
|
| Name: |
James
Bates |
| E-Mail: |
balder@flash.net |
| Date: |
06/08/99
12:00 |
| Comments: |
I
have been a heart patient since age 42 when I underwent triple
bypass surgery. Since that time I have gone through a second
triple bypass, aortic arch replacement and ascending aortic
aneurysm repair. I have had 17 angiograms/angioplasy procedures,
and just about every other test known to man. I have undergone
heart transplant evaluation, was evaluated for the TMR laser
study, and recently was accepted to enter the PTMR laser study.
This study involved an EKG, a treadmill test,and an
echocardiogram. The results of these qualified for me to enter the
random test. I underwent a diagnostic angiogram which identified
areas that needed help. As part of the protocol an angioplasty had
to be attempted, which was unsuccessful. At that point a call was
placed by the doctor to the sponsoring company in California. I
understand that a computer on that end "flipped a coin"
to see if I would receive the laser treatment or would go through
a "mock" laser treatment. In the information I received
prior to being admitted into the trials it was indicated that I
would not know for at least a year which end of the study I
entered. It has been two weeks since the procedure and I have not
received any relief. Does anyone know how long it takes, if I did
receive the real thing, to begin feeling relief? I would be
interested in hearing from any of you who might have gone through
this or just advice in general. |
|
|
| Name: |
Mary |
| E-Mail: |
mfoley@ameritech.net |
| Date: |
06/14/99
12:00 |
| Comments: |
Anybody
out there with similar experience?... My husband had a triple
coronary by-pass 1/99 with no complications. Cardiac rehab stopped
early on when he began feeling sharp, shooting pains and
sensitivity in the upper chest next to the sternum. The area is so
sensitive he needs to keep his shirt open. The cardiologists
assure him his heart is great and this is what happens to some in
the healing process. If there is anyone out there experiencing the
same or who has successfully recovered, we would really appreciate
hearing from you. Thanks. |
|
|
| Name: |
Nan
Ganz |
| E-Mail: |
nganz@clark.net
or nan02nd@hotmail.com |
| Date: |
06/23/99
12:00 |
| Comments: |
I've
just been reading through the entries again and would like to hear
more from Lynne and Gayle. We seem to have had similar experiences
with our husbands. I tried to reach Lynne once to find our what
medication changes helped her husband, but have not yet heard
back. I hope things are still going well for you. For Gayle, all I
can say is hang in there. We went through a long stretch during
which DAD was an acronym for denial, avoidance, depression, but
things seem to be getting a little better. If you get in touch
with me, perhaps we can help each other hang on. If there's anyone
else out there having a similar experience, I'd like to hear from
you too. Maybe between us all, we can figure this thing out. |
|
|
| Name: |
Beth
York |
| E-Mail: |
eaysrm@aol.com |
| Date: |
07/01/99
12:00 |
| Comments: |
Hi!
I am a sudden cardiac death survivor with an automatic implantable
cardioverter defibrillator. The sudden death episode happened
April 23, 1998 at the age of 39. I found the HeartMates revised
edition at my cardiac rehab. It helped me as much as my family. I
am looking forward to the meditation book and the video. For those
persons with AICD's and their families, try www.duff.net/zapper It
is a great site and hosts a chat support group on Thursdays at 8PM
EST. Having experienced the sudden death has changed my life as
well as the lives of those in my family. My best to all of you.
Beth |
|
|
| Name: |
Rita |
| E-Mail: |
sixcrows@noln.com |
| Date: |
07/06/99
12:00 |
| Comments: |
My
best friend, 66 years old, female, had a triple bypass in January
of this year. This week, she was told she has congestive heart
failure with pulmonary edema. She is also a non-insulin dependent
diabetic of 17 years with diabetic retinopathy currently arrested
with laser treatments. I would love to hear encouraging news from
anyone in a similar situation that I can pass along to her. Her
doctors have stopped her glucophage and she currently takes only
prandin. Thank you to anyone who responds! |
|
|
| Name: |
Ebony |
| E-Mail: |
ebony_dawn@hotmail.com |
| Date: |
07/15/99
12:00 |
| Comments: |
This
is my first time on this site but I was sure glad to find it. I am
29 years old and 2 years ago, my husband, now 31 found out that he
was going to need a heart transplant. We were very shocked, we
didn't even know that he had a heart problem. He has had some
problems, but we just got over the biggest one yet. He was having
a 3B rejection which is the worst that you can have and the
doctors told me that he probably wouldn't live through the day but
to everyones surprise, he did. He is at home now and doing
extremely well. Thank God! I would love to hear from anyone who is
the spouse of a transplant recipient. Ebony |
|
|
| Name: |
Patricia |
| E-Mail: |
Patrici8@aol.com |
| Date: |
07/27/99
12:00 |
| Comments: |
Thanks
Liz for asking about us. I hope that things went well for you and
your husband on the 17th. We were turned down for the Atlanta
transplant in 1998 and also for one in Charleston in May 1999. We
are hanging on with our good and bad days. The personality changes
are becoming somewhat out of control and we are trying new
medicines to help this. As you all know the memory thing is always
going to be there that I can handle (I just talk to myself when it
gets real bad). The violent behavior they can't say if it is
possibly Alheimers(sp) or a result of the heartattacks, bypass,
angio, diabetis(sp)or what. The only thing I could wish is that
people would try to understand and be more patient with others.
It's hard when you are in public and people get upset because
someones asks questions 2 or 3 times or repeats themselves or gets
very aggitated for no reason. We should always be patient and
consider there is possibly another reason. We have some
"friends" who don't want to be around because he can
embrass you in public. Boy, I guess they don't think that the kids
and I know this. We hang in because every now and then the man I
married peeks out and it is all worthwhile. Aren't we lucky that
the Dr's aren't always right with there time limits. My kids (12
& 10)and I try to live everyday to its fullest because we have
learned a valuable lesson that we may not get tomorrow. This is
the upside of all the downsides. There are alot of us out here and
I enjoy having coffee with ya'll sometimes just to know I am not
alone. Hang in there, we are. |
|
|
| Name: |
Nan
Ganz |
| E-Mail: |
nganz@clark.net
or nan02nd@hotmail.com |
| Date: |
08/02/99
12:00 |
| Comments: |
I
would be interested in and appreciative of any information anyone
can share with me about TIAs. My husband, Steve, had one last
Wednesday after almost 11 months of recovering nicely from his
heart attack. He's had a couple of small episodes since then where
he's missed turns when he was driving, and it's making me very
nervous to say the least. I'm glad I have this website to turn to
when the going gets rough. |
|
|
| Name: |
Theresa
Cross |
| E-Mail: |
TheCrossaa@aol.com |
| Date: |
08/04/99
12:00 |
| Comments: |
My
brother Jerry (age 27) had a heart transplant last November. He
had congetsive heart failure that runs in my family. He has
visited with others that were in the hospital while he was there
and talking to them does help him, but I think he doesn't have
contact with people like him enough. He had a Heartmate (a
artificial pump) put in while he was waiting for a heart and due
to this, he needs another surgary for a hernia that happened in
his abdomen where the Heartmate was. He was told that this next
surgary will be more painful then the previous ones. I am writing
because he has been looking on AOL for people to talk to that have
had transplants. I think he needs some acquaintances (friends)
that can fully understand what he feels and is going through. Is
there any way I can help him? Please feel free to Email me at
TheCrossaa@aol.com. I would love to hear from anyone that can give
me some direction on this. thank you. |
|
|
| Name: |
Lynda |
| E-Mail: |
L_Wyant@Hotmail.com |
| Date: |
08/07/99
12:00 |
| Comments: |
I am
a social worker recently assigned to a new CV surgery unit and
cardiac rehab in our hospital. I am also the Mom of a 22 yr. old
son who has mitral valve insufficiency with arrhythmia?s. I am
most interested in the experiences with anger, anxiety, and
depression which many of you describe. I would like to hear from
others about preparation you may have received for this experience
by education/counseling during your hospital stay. If not, do you
feel this would have been helpful at that stage. In general, how
do you think cardiac staff could have been more effective in
meeting your needs? Any input from professionals would also be
appreciated. |
|
|
| Name: |
Sue
Williams |
| E-Mail: |
good4sue@aol.com |
| Date: |
08/10/99
12:00 |
| Comments: |
Need
to find out what is "Normal" if there is such a thing.
Husband, 60 years old, had a heart attack July 15. 40% of heart
damaged, required angiogram, atherectomy, and angioplasty. Dr. was
very encouraged that a great portion of the 40% would repair. Four
weeks later he still feels very tired, he says his heart
"aches" some days. We have changed our diet, are
exercising regularly and he takes all of his meds regularly.
Everyone is different and circumstances are different. How do you
know when you need to contact a doctor or just wait it out? Not
scheduled for thallium stress test or dr. visit for two more
weeks. |
|
|
| Name: |
LOUIS |
| E-Mail: |
LMartin605 |
| Date: |
08/15/99
12:00 |
| Comments: |
In
answer to the question from a Social Worker about what was helpful
when leaving the hospital. I was in Rehab for Cardiac. The most
helpful thing I found was that the nurses and therapists were not
only caring but also cheerful, friendly and courteous and had a
positive attitude while helping me regain my strength. |
|
|
| Name: |
Nan
Ganz |
| E-Mail: |
nganz@clark.net
or nan02nd@hotmail.com |
| Date: |
08/25/99
12:00 |
| Comments: |
Since
my last entry, my husband had a stroke. Losses have been more
cognitive than physical. It was on his non-dominant parietal lobe.
I find myself wondering if the fact that we couldn't pursue
cardiac rehabilitation because our insurance didn't cover it
contributed to this turn of events. I would be interested in
hearing from anyone else who is dealing with a similar situation.
Today is the one-year anniversary of my husband's heart attack.
The stroke was a couple of weeks ago. |
|
|
| Name: |
Patricia |
| E-Mail: |
Patrici8@aol.com |
| Date: |
08/31/99
12:00 |
| Comments: |
Husband
has had drastic behavioral changes in the past 6 months. He can
become violent at times, he is very aggressive. This is more than
the usual changes that I have been lead to believe come from the
heart attacks and the by-pass etc... Can anyone offer any advise
or suggestions as where to go next. Psych. is currently medicating
him (heavily) and we have one doctor who thinks it might be
Alheizmers and one that thinks it might be TIA's (mini strokes).
Any opinions as where to go would be greatly appreciated. |
|
|
| Name: |
June |
| E-Mail: |
cjpcool1@aol.com |
| Home
Page: |
heartmates |
| Date: |
09/14/99
15:44 |
| Comments: |
Have
been though alot lately, My hubby had a heart attack one and a
half years ago and his identical twin had a major heart attact one
year after him almost to the day, they had the same things blocked
only on opposite sides same stints 3. Bad news my brother in law
will have to have a triple bi pass in a few weeks they found the
stents closed up. I thought my hubby would be ok, but now all my
fears are back and the stress is so very hard. Twin studies dont
look good. Need info. and support Thanks CJ |
|
|
| Name: |
sandy
martin |
| E-Mail: |
dasm@epix.net |
| Date: |
09/26/99
12:35 |
| Comments: |
hi
all! interested in young heart patients. I am 45 have had triple
bypass, 6 cardiac caths arteries collapsed,4 stents, restenosed,
now radiation experimental. I am a nurse with out all the answers.
Looking to make friends with folks who are at wits end. I still
have chest pains and i am no better. dasm@epix.net |
|
|
| Name: |
Laura
Lee |
| E-Mail: |
lauralee@albany.net |
| Home
Page: |
www.albany.net/~lauralee |
| Date: |
09/30/99
21:07 |
| Comments: |
My
father recently had a heart attack. He has always been a very
fussy eater, liking only breakfast food, sausages, hamburger and
sweets. He doesn't like chicken or fish or vegetables. He's
depressed about the new diet that seems to disallow anything he
would normally eat. I would like to send him a food basket with
heart healthy foods that he might actually like and I was
wondering if there are any Internet resources where they sell
things like that- foods that taste like stuff he likes, but are
good for him? Please reply by e-mail to lauralee@albany.net |
|
|
| Name: |
Janet
Helfand |
| E-Mail: |
jlhelfand2 |
| Date: |
10/02/99
15:10 |
| Comments: |
On
August 30, 1999 I suffered a heart attack. I have been diagnoised
with Prinz Metal's Angina. I am 49 years old, my cholestoral is
170 and I do not have heart disease. Prior to my heart attack I
lead a very active healthy life style with no indication of any
illness let alone the possibility of a heart spasm that would lead
to a heart attack. I have been told that of the people who have
angina only 2% have Prinz Metal's Angina and only 2% of the 2%
will suffer a heart attack from Prinz Metal's. With odds like that
you would think I could win the lottery. I would love to hear from
anyone who has the same or has suffered a heart attack with a
healty heart. I am seeking sources for information on this
condition and would like to know I am not alone. I would also like
to hear from younger people who would like to be part of a support
group for young heart surivors. I look forward to hearing from
you!! May your days be filled with the warmth of the sun and
dreams of tomorrow. |
|
|
| Name: |
Bev |
| E-Mail: |
bess@mitmania.net.au |
| Home
Page: |
http:www.mitmania.net.au/~mcc/holt/index1.html |
| Date: |
10/06/99
07:05 |
| Comments: |
Hi,
I am 39 and have a rare congenital heart disorder called Holt Oram
Syndrome (HOS). It affects the heart and upper limbs of the body.
I am mildly affected, with an ASD slight mitral valve leak ( both
repaired) and a triphalangeal thumb on my left hand. I didn.t know
I had HOS until 1990 when my youngest son was born with it. Daniel
had complex heart abnormalities and after three heart surgeries
died of CHF when he was 2 ½. I had not had any problems with my
heart until about 3yrs ago. I just got sick, in fact I was always
sick with something, bronchitis, pneumonia, pleuritis, asthma or
chest infections. I was in and out of hospital suffering from one
thing or another for months until I was diagnosed as having
congestive heart failure. My doctors had no idea why, they didn.t
feel the asd was big enough to be causing a problem and after all
it had been there all my life. I was taking medications to control
the heart failure but they were not helping at all. I was on a
rapid downhill slide. I had test after test and still the doctors
had no idea why I was so sick. By early 1997 I was in the final
stage of heart failure. My aortic valve had also started leaking.
I was dying, fast. I had surgery to repair the asd and replace
both aortic and mitral valves on the 28th February 1997.The
operation went well and I was taken to the cardiothoracic recovery
ward after being in surgery for 5 hours. I was still intubated and
unconscious. It was late that night when they started to awaken me
and by about 4.30am I was extubated. I started having breathing
problems soon after, by mid morning I was re incubated and
unconscious again. I was in bi-ventricular failure. A catheter was
inserted in my groin which had a balloon on the end of it, this
was near my heart and with every heart beat it pulsed, taking the
load off my struggling heart. During the next week I had a
temperature of between 39 and 40 degrees Celsius and was supported
with many types of drugs. By the end of the week the drug support
and respirator were reduced. I was extubated, but was unable to
breathe on my own. I was again suffering bi-ventricular failure
and was intubated, the balloon catheter reinserted and the drugs
which had been reduced were increased. At this time the doctors
told my family I had a 25% chance of surviving. I was then moved
to the intensive care unit .For the next week the drugs and
respirator kept me alive. I was lasix dependent and my liver
started to fail. My family was told I was unlikely to survive and
was called to the hospital to be with me . This was my most
critical time, but I made it. A couple of days after the support
from the drugs, respirator and catheter were reduced I was able to
support my breathing. Within a couple of days I was out of bed,
standing and taking a few steps, with support. I spent a further
week in ICU, then another week in the cardiac ward before coming
home. My heart returned to it.s normal size in 2 months and
gradually my strength recovered .I was again able to do things I
had not been able to do for almost a year. Things we take for
granted most of the time like, showering myself, eating without
throwing up, walking more than two steps at a time without having
to sit down and talking and not having to catch my breath after
every word. I lead a very normal life now, my heart is normal, I
don.t think I have ever been as healthy in my entire life. I know
I am very lucky to be alive. I never take anything for granted
anymore, take each day as it comes and just enjoy being alive. I
have dedicated a website to Daniel, which has information on Holt
Oram Syndrome, and links to other cardiac related sites. I would
like to hear from any one with HOS or other rare heart disorders.
Please visit my website and sign my guestbook or send me an email.
Bev |
|
|
| Name: |
Bev |
| Home
Page: |
www.mitmania.net.au/~mcc/holt/index1.html |
| Date: |
10/06/99
07:15 |
| Comments: |
My
website address is as above. |
|
|
| Name: |
Nan
Ganz |
| E-Mail: |
nganz@clark.net
or nan02nd@hotmail.com |
| Date: |
10/09/99
08:36 |
| Comments: |
Gilda
Radner was right--it's always something! My husband, who is
recovering from a stroke, got short of breath walking with his
rehab group last week. Yesterday he had a stress test, which he
flunked. On Tuesday, we will be going to Johns Hopkins Hospital
for cardiac catheterization. Every time it seems like we're
beginning to get somewhere in his recovery, something else
happens. He's really bummed out about this turn of events, and
I've got the worry concession. Does anyone have anything helpful
to offer? |
|
|
| Name: |
Mel |
| E-Mail: |
artngels@kenton.com |
| Date: |
10/11/99
18:38 |
| Comments: |
does
anyone have information on behavior changes after heart
surgery??My husband is haing major trouble and the doctors can not
find anything!!! Please e-mail me with any info you may
have..Thank you in advance |
|
|
| Name: |
Nan
Ganz |
| E-Mail: |
nganz@clark.net
or nan02nd@hotmail.com |
| Date: |
10/13/99
07:57 |
| Comments: |
My
husband had his cardiac catheterization yesterday, and they found
that the vessel that had been oclcuded 70% last year was occluded
100% this time. They did an angioplasty and were able to open it
50% and they replaced the old stent. The doctor thinks his
vascular problems are due to his diabetes and said that there was
enough damage in that area that they could not do a bypass. He was
in good spirits and resting comfortably when my son and I left the
hospital last evening, and he was even able to solve a puzzle on
Wheel of Fortune, something he'd been unable to do since his
stroke! To angelart: some behavior changes can be due to mini
infarcts(strokes) in the brain--a cat scan or an MRI might be
helpful. I'll get back in touch with you soon to see how things
are going. Keep in touch. |
|
|
| Name: |
robin
guastella |
| E-Mail: |
originalrahrah@juno.com |
| Date: |
10/16/99
20:33 |
| Comments: |
why
did it take me a year to find you? a year ago today my husband had
aortic valve replacement surgery at age 42. chf, chronic afib,
etc. i am still researching all the meds, adjusting to new
lifestyle, fighting with social security admin. you know exactly
how i feel at the end of the day. |
|
|
| Name: |
Kalyn
Cook |
| E-Mail: |
cookbb429@sol.com |
| Date: |
10/17/99
12:16 |
| Comments: |
On
March 6, 1999 our lives were changed forever. My 42 year old
husband suffered a heart attack and later that same day he had
double bypass surgery. Ten days previous to this he was diagnosed
with high blood pressure and was put on Monopril. One of the side
effects of this medications was chest pains. So when he began to
have chest pains he could do relaxation techniques to bring them
under control. We even called the family Dr. and were instructed
to take over the counter medication for heart burn. On the morning
of the 6th we both knew that something was terribly wrong so I
drove him to the hospital. Within minutes we knew that he was
having a heart attack. The rest of the day is rather a blur for
me. We have two children ages 13 and 10. They have and are having
a hard time adjusting to the changes our lives have taken.
Particularly the 10 year old has had many anxiety attacks. My
husband is doing very well now. He exercises regularly and we have
changed eating habits. We have also had the childrens cholestoral
checked and know that the 10 year olds is high. Does any one know
of any books and or programs that can help us to help our children
cope with all of this. Thanks. |
|
|
| Name: |
Nancy
Baldwin |
| E-Mail: |
bamadadog@aol.com |
| Date: |
10/20/99
19:02 |
| Comments: |
My
78 year old father has just returned home from a stay in the
hospital with a diagnosis of conjestive heart failure. My mother
insists he accompany her on a cruise the 31st of this month Oct.
99. She claims the doctor said it is fine. Father will have to fly
for 8 hours and change planes 3 times. This sounds like too much
for him and also it seems she is putting the airlines and ship in
a touchy spot, knowing his time is limited. Please reply, anyone.
Also dad has diabetes, has been a chronic alcoholic, liver and
kidney problems, and numerous other ailments through out the
years. Thank you. |
|
|
| Name: |
D
Robinson |
| |