Heartmates Interactive Connections

(Submitted March 14, 2005 07:33:02 by Rachael Freed )

Hello everyone, We are in the process of updating the archives and entries on this interactive connections page ... so please be patient ... all of the earlier entries will soon be available to read and respond to. While you wait, and it shouldn't be more than a few more days, please visit the other pages on the site for information and support. In the meantime, may you and your family experience full recoveries, and find a "new normal" to sustain your lives.

(Submitted March 30, 2005 09:45:00 by angela )

I stumbled on this site after tying to find a way to get my husband to stop smoking. He had a major heart attack in sep 2004 at the age of 38. we also learned he has diabetes. He was a 2 pak a day smoker prior to the MI , quit for 5 months (cold turkey from the night of the attack) then started again approx 6 weeks ago. I am at the end of my rope, I feel I can not go through another close call like what we had before. I am mad that he appears to love cigarrets more than our life together which is all the MORE precious to me now. What do I do next?

(Submitted April 1, 2005 10:59:16 by Donna )

My husband had a car accident which lead to a heart attack. After the catherization (that showed a blockage of the left main before it branched off)he had a mini stroke. After many discussions with many doctors it was decided that it was best for him to go home and recup from the stroke for 4 wks before undergoing bypass x5 surgery. He was out of work for approx 4 months and was itching to get back. I believe he went back to soon and it took him a while to get up to speed (he was a production manager). His boss replaced him as manager and put him on "special projects". His boss continues to badger him and nit-pick everything he does. We believe he is trying to make him quit - but we need the money and benifits. I left my job when he had the accident and now that he feels better I am job hunting but no luck yet. I feel so bad that I am not working and due to our debt load he must continue to work. I never know if one day he will come home and tell me that he was fired, or had a pay cut, or that he just couldn't take it anymore and quit. It kills me to see a man that is such a loyal employee and has so much to offer be treated so badly. Is this normal? I better go now the tears are starting again.

(Submitted April 1, 2005 13:16:02 by Ruby )

My mother suffered from rheumatic fever as a child. As a result, her heart valves became damaged. She has had 2 open heart surgeries in her life, twice to repair the mitral valve, and once to replace the tricuspid. Her last surgery was 18 years ago. She is now sick again. Her valves leak, and doctors say that in addition to the mitral and tricuspid valves needing attention, the aortic valve is affected too. She is 65 years old and has always been a very fit and active woman. Her cardiologist has told me that surgery for her now is not an option. It would be too risky. Any feedback would be great. I can't seem to accept that nothing can be done for her. She has always been there for me, and I can't imagine life without her.I need good information before it is too late.

(Submitted April 1, 2005 15:18:59 by Sabrina in NC )

Hi, I like what I saw in one of the messages on this site - 'finding a new normal'. I've gotta work on that. My husband had triple bypass surgery two years ago. Had afib since. Just went in the hospital the end of Feb. with pneumonia and found out he now has CHF. Been dealing with really high BP that doesn't want to come down with meds and difficulty reaching caregivers. He had a stroke yesterday. I really feel like I don't know what normal is anymore or how to get to some resemblance of a new normal. I've not been sleeping well and I know it doesn't help, but I can't until I get so tired that I can get to sleep. He'll be 70 in April, I'm 32, and we've got a 10yo daughter.

(Submitted April 13, 2005 11:50:40 by ericoleen )

I need help , and dont know who to ask, so I hope someone can offer some opinioins, I understand we need to seek medical advice, and we are, but in the meantime, knowledge is power so any opinions/experiences are appreciated. I need to know if a person can have

(Submitted April 15, 2005 22:17:12 by ANA )

MY SON IS 21, AND HAD A HEART ATTACK, HE WAS AT HIS BASSEBALL GAME RUNING TO 3RD BASE AND HIS CHEST STARTED TO HURT, HE WAITED, A LONG TIME BEFORE GOING HOME LIKE ABOUT 2 HOURS, FINALLY I CALLED 911, HE WAS TRANSPORTED TO THE HOSPITAL ,AN ANGIOPLASTI WAS DONE TO SAVE HIS LIFE , HIS LAD WAS CLOSED 100% .THE DOCTORS TOLD US THAT IT WAS A MIRACLE, THAT HE WAS ALIVE, MY SON IS NOW DOING WELL , BUT HE HAS TO TAKE MEDICATIONS FOR LIFE 6 PILLS A DAY,AND A STRICT DIET HE WAS NEVER SICK IN HIS LIFE AND WE DO NOT UNDERSTAND, THE REASON OF THIS HEART ATTACK. I GUESS IT WAS NOT HIS TIME TO GO, GOD HAD OTHER PLANS FOR HIS LIFE. I THANK ALL THE DOCTORS THAT HELP MY SON TO HAVE A SECOND CHANCE

(Submitted April 17, 2005 15:02:49 by Emilie Mobley )

By the time anyone reads this my earache will probably be gone. I am on 5mg ofcOUMADIN AND HAVE AN EARCHE NOW FOR DAYS. i AM SO AFRAID TO TAKE TYLENOL FOR THE PAIN BECAUSE OF ALL THE RISKS OF THE COUMADIN. iS IT POSSIBLE I AM ALLOWING MY FEAR TO KEEP ME IN PAIN? HELP

(Submitted April 18, 2005 02:08:03 by Lisa Harris )

I found this site last week while loking up info on a Difibulator, which is what my husband needs now. He had a Heart attack on Feb. 14th 2002, had 8x bypass on tha 19th of April of that year and it has been good until last week. His stress test had Irregular Heartbeats on it and they did another test for the Infraction number and it is 41, they say below 35 requires a difib. but they still want him to see another Dr. for this. He has never been sick until this and was doing very well until last week he now thinks the DR's aren't telling him evrything and he is gong to die. We are moving in a week to a smaller apt and downsizing...he wants to go make his funeral arrangements and get ready for what he says is the inevitable, he is 46... I am a frigging mess.... I can't sleep, eat, work, do I go tell his Dr. how he is acting? I need advice....anyone pleae help.

(Submitted April 20, 2005 14:13:48 by Claudia )

My husband started experiencing signs of heart failure in May 2003. His last echo results are as follows: Mild LV systolic function with EF 40- 45%. Enlarged right sided chambers with paradoxically moving intraventricular septum and associated moderate pulmonary hypertension with 3+ tricuspid regurgitation. 2+ mitral regurgitation. Has anyone got a similar diagnosis? How long have you been living with this condition? Shouldn't his valves be repaired. Please help. I feel scared and sad most of the time.

(Submitted April 21, 2005 00:26:54 by wanda )

well 15 feb 05 was working out on my tony little gazelle and sudden felt a sharp pain.i stopped to size up the pain that came and went very fast.so i thought it was just the heartburn i had been having for 2 days.so i jumped back on the gazelle and about 5 minutes later the sharp pain hit again,but with about 5 times the force.before i could step off the gazelle i became very sick to my stomach and my left arm went numb.i walked to phone and called 911.i got my dogs into the house as i walked out to meet the ambulance.after 4 days of tests.the last being stress test showed 80 percent blockage in lva.stent put in.doctor told me working out brought the problem out early,which is great,other words i would of had a heart attack within 6 mts.i have to admit i was and am still shocked.my 55th birthday was just 15 days earlier.I am suffering from depression,but not so much about the stent,as the reaction of my husband.when i was finally admitted into icu,he left.the whole time i was in emergency room we were surrounded by doctors and hospital staff,so we were not able to talk.I asked as he was putting his coat on,if he was leaving and he said yeap,kissed me,told me he loved me and left.i was so hurt and not to mention scared.I saw my husband 10 minutes the next morning and 15 minutes that night.spoke to him the next day by telephone and one hour later i find out about blockage.i called home and was just too upset to tell him about blockage,so doctor has to tell him.when phone was given back to me,my husband asks me what i want him to do?i believe his coldness hurt me more than the pain in my chest.i told him i wanted him there for stent placement,which he was,but i am so angry with him.i am very short fused with him and we have had several verbal fights.i have developed upper gi problems.doctor says it is not uncommon due to stress of sudden heart disease.i believe it is the anger i feel toward my husband.has anyone else had their spouse act so distant?we have been married 21 years

(Submitted April 22, 2005 09:58:03 by jimmie baker )

I have just suffered a pretty major heart attack with a 100% blockage of one of my hearts major arteries. I am a truckdriver whom was 550 miles or so away from home when it happened. My wife and her youngest daughter drove throughout the night to be at my side, and to transport me home upon my release from the hospital. I now will be facing the entire cost of the stint- angeoplasti surgery, because I was in between two different jobs, and my insurance had not taken effect. So please feel free to give me any referrals to where I might be able to get financial assistance in paying for my hospital/surgery. Thanks to anyone who can help I am desperately seeking help so I might be able to retain my home without becoming homeless!!

(Submitted May 1, 2005 11:01:54 by Beverly Trojanowski )

My husband has been told he is a candidate for a defibulator....What is a deficulator and what does it do?

(Submitted May 3, 2005 21:15:10 by simone williams )

trying to find out info about Prinz Metal Angina.I am 37 & live in australia.I was diagnosed with Prinz Metal Angina in Nov'04.I have had four major attacks since then with one in Feb'05 that i stopped breathing after i was given Morphine(for pain).I have had Angiogram & T.O.E(tran-oesphogeal echo) which both came up clear.When i have these attacks i have major changes in my ECG.Have been told that a first look at the ECG's it looks like i am having a full blown heart attack.My last ECG said that i was in Sinus Bradycardia/Rightward Axis/St elevation-consider Inferior injury or acute Infarct.Its a just a little bit too scary.I have been told that nothing can be done for me.I cant seem to spend much time out of hospital b4 I am back in with either bad or sever ecg changes.I am on the max amount of medication I can be & I still get the attacks.Can anyone let me know if they know of something that can be done.i have got to the stage where dr'c can use me as a test case,just to try & find a better lifestyle.Frustration has set in.I have 2 young kids that i would like to be able to do things with again & a job that i want to get back too.any help greatly appreciated.

(Submitted May 4, 2005 20:58:45 by Gordana Bruce )

My name is Gordana Bruce. My partner had quadruple bypass surgery 12 years ago, at the age of 36. Since then he has had a number of other cardiac procedures, so over the years, we have both learnt a lot about the ups and downs of living with heart disease. My personal experience of living with someone who has heart disease developed into a research interest, and my Honours research project examined the needs and well-being of partners of cardiac patients. I am now conducting research towards my doctoral degree in Psychology, and have expanded my research to include both patients and their partners. I am conducting my research under the supervision of Dr Elizabeth Hardie and Dr Bruce Findlay in the Faculty of Life and Social Sciences at Swinburne University of Technology in Victoria, Australia (www.swin.edu.au). My study examines the experiences (both positive and negative) of patients and their partners after a cardiac event, such as heart attack or bypass surgery. I am also interested in how a cardiac event affects the coupleâs relationship. I am looking for both male-patient and female- patient couples to fill in a survey, which will take about 45 minutes to complete. The survey has been approved by the Research Ethics Committee at Swinburne University of Technology and asks about your experiences of living with heart disease. Both members of a couple are invited to take part in this research if: you or your partner have experienced a cardiac event in the past 12 months; you were living with your partner at the time of the event and are still living with your partner now; you are both fluent in English; and you are both over 21 years old. The results of this research will help in designing programs that can help better meet the needs of couples living with heart disease. Complete the survey on line at www.couplesheartresearch.com or email me for more information at: gbruce@swin.edu.au Please pass this on to anyone you know who may be interested in taking part in this study. Thank you.

(Submitted May 6, 2005 12:52:55 by Robyn N Hemmert )

my boyfriend has congestive heart failure and is in a state of denial. i think he feels if he ignores the problem it will go away. i dont know alot yet & need all the info i can get to understand his condition better, im not any help w/o knowledge help!!!

(Submitted May 16, 2005 14:59:02 by Garry Goddard )

Please help if you can. I had a triple by-pass heart operation about 17 years ago. During the last ten years, I have been experiencing extreme chest pain whenever I have done any exercise. The pain follows the activity, not during it. For example, I might lift something or wipe the car with a leather; not necessarily particularly strenuous but always involving the upper arms and chest. An hour later, the pain is almost unbearable. It feels as though the pain is muscular or bones. My blood pressure is erratic, sometimes reaching 200 over 119. Often this rise in pressure will follow a pain attack but not always. It ususally returns to about 140 over 85. I am on medication for high blood pressure (Ramipril) Here is a summary of the recent steps I have taken to get to the bottom of my problem: á I have recently returned to the heart surgeon and he put a couple of stents into the rear artery. He had no idea what was causing the pain but referred me to a skeletal specialist, who has referred me for a bone marrow test. á I have seen a physio, who thought the muscles in the chest were very knotted and beat them up. I think I noticed some mild relief. á I have seen an acupuncture chap who has given me herbal pills and stuck me with needles. He talked about Îdirection of blood flowâ but could find nothing wrong, so could not offer a cure. á I have seen a chiropractor, who man- handled me but just caused more pain. Recently, I visited I read about Prinz metal disease and this seemed to be promising but the heart surgeon rubbished the suggestion. Can someone suggest what might be wrong with me? The pain just gets worse and worse.

(Submitted May 19, 2005 09:27:47 by Nancy Zimmerman )

My 78 year old mother was told by her doctor that she needs a defibulator implanted to regulate her heartrate. She is worried about the pain of being shocked by the defibulator. Does anyone have first hand knowledge about this that you could share with me? I worry that she will choose not to have the defibulator put in.

(Submitted May 22, 2005 15:23:51 by Olivia Arrieta )

My mother (age 80) has developed fluid in her right lung, has been mostly in bed, coughing up blood tinted phlegm for almost 3 weeks and EXTREMELY fatigued & short of breath. The (PCP) doctor said there is nothing to be done except continue the diuretic & cut down on salt. She has atrial fibrilation, a pacemaker, and had bypass surgery twice. The last surgery included mitral valve replacement. She is on Coumadin & a couple of other heart medications. I don't understand the connection between all these things. What does the pacemaker do? Can she still have a heart attack? Is her heart going to continue to deteriorate? I don't know what to expect nor when I can expect it. Can she go on like this for years? 1,5,10 years? Is her current condition something potentially fatal?

(Submitted May 23, 2005 12:02:11 by Andrea Evans )

Dear Caregivers of heart patients. You like, I , have had an earth shattering experience and now it remails for us to make, at least temporarily, changes that will perhaps keep the peace between us and our heartmates. At this time my husband is about 6 and a half years from his major heart attack which shut doen and damaged his heart. He was "shocked" back in the rear of the ambulance on the way to hospital. Within 3 hours of the attack ( at home) , he was surrounded by me, our three children, their mates and having tripple by- pass surgery. The surgery was a success but the patient is not the man I married. Last month we had our 44th anniversary. We still love each other but there is a very different element in our relationship. Since Jan. 2004, Joe has been to the hospital ( all ways by ambulance) 6 times, I think. maybe more. This extremely active man has become negative, very bitter and can slice me open just with a simple conversation about the way I Have sone something, or what I have cooked or said which he differs with. WE NEVER fought prior to the accident. He was a very active Christian and always ready to help others. He has become an old man who rarely is kind except after one of his ourbursts where he realizes he was wrong. In an instant that December 98 morning, I went from the cared for to the care giver and it has been a nightmare. I have wonderful children, grandchildren and friendss. Most of all my faith in God sustains me through these depressing times where I feel much less than worthless--like a penny waiting for change. Whatever the future holds, will be good because I know WHO holds the future. This too will pass. We will get through the bad days, and the good hours or minutes. That is truly the balance. JOe wants me to stay right beside him. like a small child. I must not be on this computer for long because he is lonely. So hi is inviting his frinds over. That is good. I don't like the part where I am to run a tea chouse for the visitors but I can handle it. AS life goes, we are very well off. I am devastated that Joe is in the last stages of CHF and so much has changed but so many others have had their lives changed in just an instant. Watch out, kssp trying to find a good thing to agree on and not ust the negatives. Don't every separate--to go to the store or take out the garbage or go for a walk or ride on the scooter. Those may be your last words to each other make sure they are kind and loving. They will be with you the rest of your life. God bless you.

(Submitted May 23, 2005 12:13:48 by Andrea Evans )

Oh,my, I just read my last note on here and the spelling is soooooooooo bad. Not because I can't spell but I was being checked on and did not have time to edit the piece. This is just one more thing that goes with end stage CHF. Sorry.

(Submitted May 25, 2005 08:42:39 by Sam Kegley )

May 24, 2005 Tomorrow Fairy Tales and Trepidation I am normally a pretty positive guy. I have to wonder a little about tomorrow though. I had a quadruple by-pass operation twenty years ago this past May 16. Tomorrow I will go to Clinical Cardiology at Riverside for review of the stress test results of tests taken May 18, last week. There is apparent blockage and Dr. Ujayle will review the results with Jeanie and me and I will go to the catheterization lab for possible stint(s) or whatever under Dr. TimkoÎs care. My trepidation arises because of my thoughts after the 1985 operation and of my childhood association with fairy tales. My thoughts in recovering from the by-pass were that it was so sad that my dad, who died of a massive heart attack on the caboose coming back to Portsmouth on the N & W (his job), might have had another twenty years of life as I expected to have because of the operation. He was 54 in 1959 when he died, which was before they were capable of doing such operations on ordinary people like us. Why my trepidation now? The twenty years sticks in my mind because it was my own estimate and not so well founded, just a hunch. I was only 52. It isnât just fairy tales, but stories recently indicate that people near death, make it past a benchmark date, such as Christmas or New Years or a birthday or anniversary or such before succumbing to whatever disease and death. And in fairy tales, your wishes are granted as you state them and no more it seemed to me. Negative vibrations for this positive guy? Only slightly. Before the event of twenty years ago, I was convinced that I would never die or at least I had never thought of dying. However, laying there with time to think I kept coming back to thoughts of dad and the timing in life which permitted me to live on whereas he died without the possible life-saving operation. Not that I should feel guilty, yet I did. Dad enjoyed his life and family and I was married and away at college and my two older brothers and a sister were also married and out of the nest, but the younger of the familyâs ten kids were still there at home. Sandy was only 11, Sharon was 13, Paul was 15 and Mary Lou was 17. Jim & George were 19 and 21 respectively. So sad that dad died when he had so much and so many to live for. Iâm not morose or deeply worried. I just donât want to suffer from a self-limiting prophecy in barely passing the twenty year limit. Thus my fear of tomorrow. I have so much I want to live for.

(Submitted May 26, 2005 08:51:49 by Sam Kegley )

The catheterization occurred without incident May 25; however, no angioplasty and no stint. The orifginal arteries are completely occluded and the bypass grafts are badly clogged. I am strangely enheartened, mainly because Dr. Robert McVickers will do the bypass grafts again. He did an amazing job the first time twenty years ago. I wonder if I'll be able to have another in twenty years (I'll be 92 then). Dr. McVickers is retiring in another two to three, but I won't require as long a warranty coverage then.

(Submitted May 26, 2005 14:54:40 by PAT MOSER )

Hi, So nice to find this site. Had a heart attack Sept. 2004. Had a stent put in and 3 days later a defribullator because of ventriculor tach. After seeing the news today about by-pass being better, was wondering if by-pass can be done after you have a defribullator? Thanks for any help or advice.

(Submitted May 30, 2005 00:59:20 by grannyann )

Hello, I'm new here. Seeking info on cardio-myopathy. A member of my family in his 20's had a vir-us attack his hear-t 6 weeks ago and it left Him with 20% function. They put in a de-frib-ulater and sent him home to rest today and told his wife to apply for dis- abil-ity for Him. So I'd also appreciate info and experience with de-fribu-laters. Thanks for your time. granny-ann

(Submitted May 30, 2005 14:19:22 by Mr S.Pal. )

I had an Heart attack on September,2001.After cure,ihad two stent Angioplasty at LAD & RT. CORONARY ART.HAVING NO CHEST PAIN SINCE Angioplasty done on 09 th january 2002.From 1st Februry 02, I AM WORKING IN A Responsible postlike Executive. Only fear if stenosis occur again. If any body tell me about symtoms/signs it will be helpful for me.I AM WALKING FAST,DOING ALL HOSEHOLDWORK AND MARRIED LIFE RNNING SMOOTHLY.

(Submitted May 30, 2005 23:00:37 by Iva )

Does anyone have much information about a low heart rate? My husband (49yrs.) had a heart attack 3 yrs. ago. He was blessed with no permanent damage..only 1 stent to open an artery and a balloon to do another that was partially closed. He has been fine, but occasionally has times in which his heart rate gets too low. (ex. 53) He's not on any constant meds, but takes multi-vitamins and an aspirin a day. When his heart rate gets too low he'll complain of being too tired, of course. What can be done to correct this? Our cardiologist isn't readily available to talk to about this stuff. Family doctor just wants to keep running tests...more bills. Any comments would be appreciated. I can also be a good listener to anyone who needs to vent about their situations. I've been there. It helps to have someone to share things with. Thanks.

(Submitted May 30, 2005 23:38:37 by Sarah )

Hi! My husband and I have two kids ages 11 and 6. He has been in the hospital now for nearly a month, heart replacement valve surgery. He has been operated on ,only now he can't move his leg (right). He is sad, frusterated, and wants to come home now. He is only 44 years of age and I am 36. Why?? I ask can't he move his leg yet?? I want him better and the kids want him home. I love him wholeheartedly and I hurt most of the time for him, but i have to be strong for the kids. I am hoping and praying that he will be fine. Not giving up hope. We love you Dad.

(Submitted May 31, 2005 07:57:33 by Paul Hawgood )

I had angioplasty in 2002.....3 main arteries all blocked by up to 90 per cent. Breathing easier. BUT I have developed really awful pains in both legs and lower back as well as numbness in feet. (I have heard of others who have this kind of thing). No one seems to know what to do medically....at last I am being referred to the pain clinic. It seems that my right artery which previously had a balloon but rejected 3 stents is clogging up. I am loathe to have surgery. I 'died' on the table during the angioplasty with the problem of trying to get this stent in. I am most interested in all natural conservative means to help and obviously to do something about the calcium which all doctors say is unavoidable.

(Submitted June 2, 2005 13:05:04 by Ana Carey )

Hi, my father is in stage four of heart failure and all of a sudden he has improved considerably after being discharged from the hospital when only two weeks ago we thought he was almost at the end of his life. What I would like to know is - is it normal for my father to feel this well - is this a good sign or a bad sign, obviously the doctors gave a pretty grim picture of what the future holds for my father. I would be really grateful for a reply as this is really puzzling us. Thank you.

(Submitted June 2, 2005 16:30:19 by jane )

i am someone who has dilated cardiomyopathy and I did have 10% heart function it is now 35%i would like to talk about lifestyles

(Submitted June 5, 2005 08:37:29 by Linda N. )

Hello! I am so happy to have found this website. My husband is 51 and had quadruple bypass surgery September of 2004. After the surgery he recovered fairly well. Because I worked at the local hospital I aready understood what he was going to look like and everything his would be going through emotionally. That part did not bother me too much. What I find that bothers me is he had stopped smoking from the day of surgery through March. I don't know what happened but in March he began smoking again. Well, by April/May one of the bypasses was blocked and he had to go back and have a angioplasty done. You would think this would stop him from smoking, but NO it has not!!. This is the part I can not deal with. Is there anything I can do to help him?? I have tried the nagging route bur of course that does not work. He knows it is a problem but he just can't stop. I've asked him to get the patch but there are always excuses about why he can not call the doctor to get the prescription. It this point I care but I don't care. I really need a way to come to peace about this whole thing. I have medical issues myself that are getting worst because of the worrying I'm doing about him and that needs to stop. One of us needs to be healthy. Please send any ideas you have and thanks for taking the time to read this email.

(Submitted June 8, 2005 19:12:11 by Gordana Bruce )

Hello everyone. I am visiting this site to let you know about some research that is being conducted by Swinburne University in Australia (www.swin.edu.au). The study is asking both male- patient and female-patient couples who are living with heart disease about their experiences (both positive and negative) following a cardiac event such as a heart attack, angioplasty or bypass surgery. I have posted a message here previously, and would like to thank those people who have done the surveys already. However, following a number of enquiries, I have increased the time since the cardiac event to 2 years, rather than 12 months. If either you or your partner have experienced a cardiac event within the past 2 years, and you would like to find out about participating in the study using an online survey, please visit the research website at www.couplesheartresearch.com for full information and links to the relevant surveys. If you have any questions about the study, please feel free to e-mail me directly at gbruce@swin.edu.au Thank you for taking the time to read this message. All the best Gordana Bruce Faculty of Life and Social Sciences Swinburne University of Technology Victoria, Australia

(Submitted June 12, 2005 20:45:41 by goldie )

My son was diagnosed with paracarditis at 16, it was treated and never had any other problems until last year, now at 25 he was diagnosed with cardiomyopathy and chf. He has been on medications with no improvement for almost a year now, nothing has changed, his heart is still only putting out 20%. Tomorrow morning he is having a defibulator put in as a precaution,since his doctors told him is a candidate for cardiac sudden death. You would never know anything was wrong with him he has no syptoms at all and still does everyting he did before, including playing drums in a band. They say down the road he may need a heart transplant, but for now just the defibulato. Does anyone know if with the defibulator if there is any chance of his heart getting better?

(Submitted June 13, 2005 13:16:45 by Carole )

I would like to hear from someone with young children to see how others cope in this situation. My daughter is three and I feel an extra burden ( and guilty for it as well) in caring for her mostly by myself. My husband has been in the hospital 7 times in the past 3 years with stents and a quad bypass 3 years ago. thanks.

(Submitted June 14, 2005 17:01:08 by Edna )

Hi all 10 years ago I was diagnosed with cardiomyopthy. I am doing well now thankfull for 1 special doctor who really cared. Since then my father has undergone 5 bypasses a week and a half later my brother had a heart attack. He's 38. My son has just had a pacemaker put in a week ago and is doing fine. He's strong as the rest of my family. Unfortunately I am having a real deal trying to deal with it. I would love to hear from others in the same situation. I would love it. Take care all and thinking of u always. your friend Edna

(Submitted June 15, 2005 13:12:05 by Steve Terry )

Hi, I am 42 yrs old and had a stint placed in one of my arteries, a few weeks ago. I've already had my stress test and my ECHO and all is well. However, I still feels aches and dull pains coming from my heart area. It is nothing like the angina that I had and the doctor said not to worry about it. Could it be stress or the artery dealing with the new object (Stint)? Has anyone had a similar experience? Thanks!

(Submitted June 19, 2005 13:49:50 by Tawana Bradley )

Hi everyone my daughter had a heart transplant in february of 2004. I am looking for any kind of support, guidance, and resources that concern this issues. Other parents of children with transplants or any transplant welcome to respond.

(Submitted June 21, 2005 18:53:26 by SHAREE )

HELLO EVERYONE I AM 28YRS OLD I HAD DOUBLE BYPASS SURGERY ON AUG 4,2004. IT'S ALMOST BEEN A YEAR NOW AND SOME OF MY DAYS ARE BETTER THAN OTHERS BUT MY QUESTION AND CONCERN IS HOW LONG DOES THE BYPASS SURGERY LAST FOR. I DO EXCERCISE NOW OF COARSE I TRY TO EAT RIGHT AND I HAVE A NASTY LITTLE HABIT THAT I NEED TO KICK RIGHT NOW SMOKING! BUT FOR THE MOST PART I'M OKAY I DO GET TIRED EVERY NOW AND THEN AND I MUST ADMIT THAT WHEN I FEEL TIRED I DON'T ALWAYS STOP WHAT I'M DOING, I KNOW I SHOULD STOP AND REST BUT IT GETS HARD WHEN YOUR A SINGLE PARENT WITH TWO BOYS BUT I'M BLESSED.SOMEONE PLEASE GET BACK WITH ME IF ANYONE HAS THIS ANSWER,MY BIGGEST FEAR IS GETTING CUT OPEN AGAIN!

(Submitted June 22, 2005 01:08:35 by Katie )

I'm 15 years old and my father is 47. three weeks ago today, my dad was feeling incredibly ill and like he had pneumonia. He was given the necessary antibiotics and left his doctors office. The Monday after, he still felt ill and his ankles were swelling pretty bad. He called his doctor and wanted him to go to the local hospital for an electrocardiogram or something like that, he went and was released, then called as he walked in the door and told that they wanted him to return to the hospital and they'd admit him. After more tests and 5 and a 1/2 hours of waiting, we were informed that he'd had a "significant" heart attack that had caused "significant" damage. We were basically told there was no hope. Over the next two weeks, we found out that he could have an artificial heart (called a HeartMate) put in. The surgery was monday. He is now on the list for donor hearts and in ICU. There were complications with the original surgery and they had to reopen twice on the first night. 24 hours after the second surgery was over, he could communicate with us through sign language attempts and hand motions. He can kind of open his eyes. Has 28 IVs (or so) connected to him, and is on a vent. Dad also has a slight fever (100.6-101.0). Thsi COULD be infection, could just be from the blood transfusion, or something we don't know about. If anyone has any good information about the recovery (how long, how hard...) Or a personal connection to a person with the HeartMate LVAS XVE, I would really appreciate any stories or information about how recovery generally goes. Also, info on the diet that's to come would be great. Finally, info on what to expect with a heart transplant would be much appreciated. Thanks.

(Submitted June 24, 2005 03:41:56 by Michelle )

I am engaged to a man that has a 13 year old son who has Tetralogy of Fallot; his name is Cameron. Until now I've never been close to anyone with a heart condition, nor have I ever known how scary it is when someone you care so much about, is living with such an uncertain future; especially a child. Cameron's scheduled to have his 5th open-heart surgery August 1st and I would greatly appreciate everyone's positive thoughts and prayers! It would be an honor to have everyone visit Cameron's website www.cameron-g.com and sign his guestbook. Cameron checks his guestbook every day and I see him draw strength from all the wonderful messages that people leave. Please take a moment to check it out and be sure to share the webite with a friend. Thank you!

(Submitted June 25, 2005 11:52:23 by LISA )

Hello-- My dad just passed the other day ,when the doc came to tell me i put my hands over my ears i didnt want to know ,i told everyone they were crazy, cause he wouldnt do that,that was my daddy and he would have told me ,i made them let me see so i could show them they were crazy ,i knew deep down he was gone he had been sick and was so tired of being this way but i honestly thought i could just walk on in and that would make it all right ,i thought i could fix it, I truly believed this ,well they opened the door and i hit the floor and just screamed i want my daddy over and over i want my daddy,oh by the way, I'm 34 and the only child in my 34 years i have never seen, been around death. i thought i was dying ppl tell my it hasnt hit me yet what does that mean.i was daddy's girl he wasn't married it was just him and i but he was a looker the ladies loved him so. I just don't know what to do now keep busy hmmm I'll let you all in on the poem so maybe you to can enjoy a piece of my wonderful life with my dad. (MY DAD) YOU ARE MY DADDY IM PROUD TO SAY I HAVE TO TALK TO YOU MOST EVERY DAY I LOVE YOU SO MUCH WORDS CANT SAY AND LOVE HAVING YOU AROUND EVERYDAY THE WOMEN THEY LOVE YOU ITS PLAIN TO SEE BUT AS LONG AS IAM #1 THATS ALLRIGHT WITH ME I LOVE YOU DADDY LISA (AKA) THE KID

(Submitted June 27, 2005 23:02:31 by Joanne H )

My situation is that my aunty who is 37 yrs old has recently had a slight heart attack, hrs later she had a major heart attack in hospital thankfully they stabilized her, then about 2- weeks after getting out of hospital she was experiencing tingling sensations on her face, we instantly called for an ambulance, when she was taken to hospital they did tests and found out that she had just had a stroke. I am really close with my aunt and she has told me she wants to speak to anyone around her age who has experienced these medical conditions. I am so scared for her as she has 7 children and is a single parent as of about 3-4 months ago when her partner was killed in a car accident. So if anyone could send me an email to pass on to her it would be greatly appreciated.

(Submitted June 30, 2005 17:44:15 by Ann )

My husband (27) had open heart surgery about 6 weeks ago to repair his mitral valve. His recovery is going well, he is already jogging alittle again. But the bills are starting to add up, his insurance is awful, and I'm due in about 3 weeks! Does any one know of any where we can apply for aide? We don't qualify for medicaid.

(Submitted July 2, 2005 20:36:21 by mary houston )

I have been told that I need bipass surgery. I will need 5 bupasses. After reading some of the letters about the brain being affected, it is very distrubing to me. I've been told that I will be up and doing well in a few weeks, but the letters sound more like months. It makes me not want to do this surgery. Help!

(Submitted July 12, 2005 09:10:29 by Sue Garvey )

Hello! My husband had a quadruple bypass 8 months ago and is doing fine. His energy level is the best I've seen in years and he faithfully exercises an hour a day and watches what he eats. However....his personality is horrible! He is edgy, grouchy, and just plain mean. He barely speaks to me and always looks so sad. What's going on? Any suggestions? I'm not even sure he knows how different he is and I'm afraid if I bring it up he'll get worse. Any help or advice would be appreciated. Thank you. Sue

(Submitted July 17, 2005 20:25:42 by Kelli DeMoro )

Hello everyone,PLEASE READ THIS AND HELP ME I have a wonderful Italian grandfather who had tripple bi-pass surgury last year Aug.2004. He lives in Ill. I live in Ca. He and my grandmother come out every year and spend a couple of weekes with my family. This is very different. My grandfather isn't feeling that great mind you he's always been very strong and a very determinded man. His blood preasure is low, his legs are weak all the time and his jaw is hurting today. It's been a year sence his surgury and I don't feel the docs are taking great care of him. Does ANYBODY know why he is weak his blood preasure is so low now?? I need some questions answered so i can contact his doctor and take care of this NOW please contact me at keldemoro@yahoo.com THANK YOU AND GOD BLESS ANYONE WHO HELPS ME (HIM)

(Submitted July 24, 2005 22:11:03 by denis birdsall )

in april of 2005, i had a heart attack at home at 7 am My wife took me to the local hospital where they stabilized me. they sent me by ambulance to ashveil they found 100% blockage to the right side of my heart and used a wire to open the clog and place 2 stints. this was done at the V.A. hospital. I could not have recieved better care any where...I am on 3 kinds of meds.and doing fine I am 63 and still painting houses every day ( changed my diet somewhat though )

(Submitted August 1, 2005 20:25:06 by charles appleton )

im going into surgury on the 10th of this month for my second valve replacement. i have a porcine valve now... i would like to talk to someone who has a michanical valve. i need to know how they like it as apposed to the porcine valve. please get back to me as soon as you can. i know i have to take warfin for the rest of my life but ive had a man tell me that the "ticking" sound as a result of the mechanical valve drives him crazy. is this true? please reply

(Submitted August 3, 2005 15:33:45 by Dorn Reppert )

The story is too long to tell, but if I put many of your accounts together, the result is mine! At 35 (in 1990) I was too young, strong,and the picture of health to have a problem (my Dr. speaking). 9 months later I had an emergency double bypass, due to a 99% blockage of both the Left Anterior and Right Anterior arteries. In October of 1992, I had a third bypass to repair a fractured artery that made it necessary for me to have clots desolved several times over that 2 year period. From that time on I was great, able to do anything and everything, that is until 2003. Toward the end of 03 I started running out of steam, with exercion, and in September was the willing recipient of 3 Cypher Stents, in the original leg vein graft (the one used for the LAD 15 yrs earlier). Over the next few weeks I was in and out of the hospital with what seemed like an alergic reaction to something. My Dr kept assuring me that it was all in my head, and that I would adjust eventually. I did, and for most of the last 2 yrs, I have again felt great. I joined the gymn, dropped 25#, watched what I ate, took my Plavix and all the other pills I had prescribed as a result, faithfully. 2 weeks agoe I again started feeling weak and tired with shortness of breath so severe that I almost passed out several times. Wednesday 28 July 2005 I was grilling hamburgers for A sports camp graduation at my church. and experienced the most painful Agina of my career, almost falling to my knees. It passed within seconds and I passed it of as nothing. The next day while working at in my home office, my left arm went numb and my face began to burn. When my wife came home, I asked her to drive me to the ER. On the way, while shedrove, I laid back and took a double puff of nitro, which took the pain away. At the hospital they ran all of the tests and they all came back negative. I was admitted as a precaution, and a cath was scheduled for the morning. To make a long story short, the cath revealed that the stents have already closed up, even with me playing by the rules! The Dr says there is nothing they can do about it, and besides, I don't really need the LAD, and not to worry about it! My question (s) are: If there is nothing to worry about, why the symptons? If I don't need it (the LAD) why was it "emergency" surgery 15 yrs ago, with complete bed rest until the surgery was complete?, and, Why did the stents absolutely have to be placed there 2 yrs ago, requiring me to take all these chemicals that I never had to take before?!!! Can someone help me with an answer or two? Oh yes, I forgot to say that I read an article in the local paper about the high incidence of alergic reactions and deaths attributed to the Cypher Stents, If I remember correctly, a second warning was issued by some organization, concerning them. Dorn

(Submitted August 12, 2005 10:06:49 by Pamela Forncrook-Coleman )

My Father-in-law had triple bypass surgery a year ago and is now suffering dizzy hot flash type spells that can last for even an hour or more, some shorter. He has been checked out and his doctor said his heart is doing fine. He also has Prostate cancer now. I would like to help him get over the spells as they are just taking the life out of him. They did all types of tests and physical therapy (something about crystalization in the ear) but he still has these spells. If anyone has experienced this happening to them, please respond. Thank you.

(Submitted August 12, 2005 11:39:44 by Cynthia )

My husband is 42 and in very good health except for the cardiomyopathy that was diagnosed a year ago. His doctor plans to implant a defibrilator in the next month or two. What kind of recovery time should he expect and will he be able to return to his active lifestyle? We are waiting to meet with his doctor for more information, but I would appreciate any helpful hints!

(Submitted August 13, 2005 14:25:37 by Mary Ann Kalarovich )

My husband suffered a haeart attack in 1989, Dr. says his heart has enlarged and only pumping at 20 or less % Part of it is damaged and he is going to have a defibulator inplant Aug 22nd. Anybody with simular experience? I need all the support I can get. Good or bad. Thanks

(Submitted August 14, 2005 13:02:32 by Andrea Evans )

I am seeking solace from those of you with similar experiences or even on-lookers who have watched this behavior with other families. My husband of 44 years ( as I have posted before in the past 7 years) has a massive coronary and tripply by-pass emergency surgery in 1998. We managed and kept a more simple but not any nager. Then in Jan .2004, he started the first of may trips to the hospital for his maassive edema and anger outbursts. He became weaker all of the time. In the past monts he has been in and our of hospital and has blasted me verbally to no end. But now that he is in a care home he seeks to break every rule in the book. Then he will call me and say how much he regrets his houtbursts and that he is so sorry , he didn't mean the things that cut me so deeply and please forgive him. This rollercoaster is over a year and a half old but it doesn't get any better, he is weak but insists on getting a pass from the care hom e and I am so afraid that he will get kicked out of there and I can no longer care for him on the bad days. I have my own health issues, arthritis and fibromyalgia and ruptured sdisk in my back. I want to run away but never sould I love my husband but I don't know this man and I keep gong to see him in the hoome, doing his laundry, ply into the stuff he dreams up and am living frightened all of the thime. No, not of anything physical but mostly of having him back here and being expected to care for him at my detriment. Is there anyone who has seen this ? Can anyone suggest anything. I try and think positively and not be concerned but that doesn't work. What an ending to a wonderful marriage. It is awful. Thanks for writing if you can. Andrea

(Submitted August 20, 2005 22:23:41 by ket )

I've been told my father is in end stage heart failure. He has needed a transfusion earlier this summer, and grows progressively more pale and weak. Can anyone tell me what the projection of time might be on this? the cardiologist recommended hospice, but my parents aren't open to this.

(Submitted August 25, 2005 18:49:57 by sandra )

i was 29 when i woke up one morning and could not feel my left foot against the bed my big toe was a blueish colour and cold. after seeing my gp i went to the hospital. i was told that i would need an angiogram because they felt i had a dvt. my angiogram showed i had embolisms and cloting in my arterie.i was rush down for operation it took 5 hours to try to save my leg then 3 days later i was rushed down again for another 5 hour operation. i was told i could lose it and they discribed a prothesis fortunately they saved the leg but for 5 years i have had difficulty walking due to claudication i dont go out much and it is hard because i dont drive. my doctor say that there is nothing i can do and that i got to make changes to my lifestyle. i dont know if a walking stick or wheelchair would help me i cant get dla so i feel stuck. i have two children and my husband and i am struggling can anyone help or as anyone got the same?

(Submitted September 3, 2005 15:08:37 by Gail )

On Jan. 14, 2005 I had two valves replaced, two by-passes and a Maze procedure. I was doing fine until Aug. 9th, I had a heart attack and had a stent put in and angioplasty done on two other arteries. My cardiologist said that this happens in approx. 22% of cases. My echocardiogram in June was fine . Why does this happen ?

(Submitted September 9, 2005 12:11:13 by celeste todd )

I'M having problems with my left arm going numb,its been this way for 2 weeks now,and seems to be getting worse,now im getting dizzy and that might be from the 600mg.ibuporfen pills my doc gave me,there treating me for tendinitious,but it feels like its gettingworse,what should i do?

(Submitted September 23, 2005 06:02:48 by Jody Jackson )

On Monday morning my Father went into cardiac arrest. His heart stopped (for the first time ever, he just turned 57 years old) and they used a defibulator at his work to revive him. Monday, Tues and Wed morning he was heavily sedated. Wed. around 10am the doctors took out the breathing tube and he started talking. He is talking now (Fri.) however he is not the same person. He knows people and gets some stories right but has probably lacking in his short term memory. They have started some therapy with him. Can anybody tell me if this is common? Will he gain his short term memory back? Please help. I live in FL they live in WI and I fell helpless here. I would like to know more that maybe Doctors aren't saying. Or that maybe my Mom is asking the right questions. Thanks much, Jody

(Submitted September 24, 2005 06:03:03 by Nari )

I have been recommended by my hospital consultant to have a angioplasty because one of my minor heart artery is blocking blood flow to the heart. I am 53,. Can some one tell me if there is alternative to the angioplsy. I am on medicine prescribed by the hospital consultant which I have been taking religiously daily hoping the arteries will dilate to remove blockage. Am I doing the right thing in delaying the angioplasty offer? I am scared of operations! Regards

(Submitted October 5, 2005 09:37:32 by Susie )

Hi, My husband went through the triple by-pass surgery 1 1/2 years ago, has had a pacemaker/defib. put in since, and has a abdominal aortic aneurysm. He is fine now from the bypass, has no problems with the pacemaker/defib. no problems so far with aneurysm, but now he has congestive heart failure. We are really having the trouble with this one. He now has extreme fatique and other problems with it.My questions, Does anyone know why all of a sudden a person has congestive heart failure? He seemed to be doing so good. Also, I would like to know others symptoms of CHF. Thank you so much!

(Submitted October 5, 2005 22:23:34 by Laura Mukosey )

My Mom died on September 27th 2005, she collapsed on the floor in the dining room at the age of 76. I left for a while, and she knew she had congestive heart failure and shouldn't be doing things around the house that were strenuous. She started painting a little in the bedroom. Well, the doctors tell me it was a massive heart attack and she was brain dead. It took the ambulance almost 20 minutes to get here. They told me to perform CPR on her. I tried my best. She took 3 days to die in the hospital and I feel guilty and upset inside that perhaps I could of saved her. I just don't understand how she kept breathing if she was brain dead.

(Submitted October 10, 2005 23:00:01 by alana )

How soon after surgery, one can travel by plane?

(Submitted October 11, 2005 22:47:51 by Deanna )

Hi! I am 28 yrs old and my father, who is 60, has been diagnosed with CHF. He is currently in the hospital for the second time since June. He keeps getting fluid overload. He is an alcoholic and has been for as long as I can remember. When he found out he had CHF he did quit smoking but he continues to go to the bar. I don't think he will ever stop. He believes that he can go to the bar one night then double and triple up on his Lasix the next day to get the fluid off. My question is: Does anyone know the life expectancy of a patient with CHF that does not comply with the lifestyle changes that are necessary? I have tried to talk to the nurses and doctors but nobody will tell me anything and my dad gets very confused. I need to know what to expect. I need to know what it will be like when he starts going downhill. I am an only child and my mom passed on when I was 15 and she was 43 from a massive heart attack. Please if anyone can I help I would appreciate it. God Bless.

(Submitted October 19, 2005 13:26:39 by Diana PLEASE HELP )

I am 31yrs.old and my boyfriend of 1 year is 67yrs.Earlier this week he underwent bypass surgery for 5 blockages. Surgery went well he is still in the hospital. This all happened because for 2 years before we met had angina pains and when we met and i witnessed one of these attacks i pushed him to go to the doctor and this how it was discovered that he had 5 blockages. Of course it doesn't help that he has diabetes high cholesterol and bi polar disorder (for which he will not seek help and is impossible to deal with) I have never experienced anything like this and i have been there for him the best that i can. I am left with alot of emotions and am depressed and even though i know he is okay this experience is taking its toll on me for i can't sleep i cry alot and the other day i wanted to visit him and he told me he did not want it to be too much so he suggested that i not visit and i got extemely upset because i waited hours and hours while he was in surgery and would not leave until i knew he would be okay and saw him in the ICU he was alsleep. I try to tell him that while he is the one in the hospital this has an effect on me and visiting him would be good for me mentally and with this he fights with me and argues . I love him a lot and i don't want to break up with him but i don't know what to do or how to cope with the situation which is only worse since he stopped smoking and bipolar people are known to impossible at times. I don't know how to make him understand how i feel. He asked if i was going to visit and i lied and said no just so we would not argue. He has no family no friends to be there for him all he has is himself and me. I have begged him that once he visits his PCP to get a therapist so he can be on meds. He doesn't really respond and I just don't know how to handle all of this please give me some guidance

(Submitted October 21, 2005 18:38:27 by Amy )

Haven't been here in a long time...but I gave this website to someone today...and thought it was time to visit again.

(Submitted October 23, 2005 00:22:36 by Karen )

My husband, age 44, was recently diagnosed with end stage heart failure. Currently in CCU, he has placed on a transplant list after having a pacemaker/ICD with seemingly no positive outcome. His liver and kidneys are not functioning as they should so now they are trying to get the right medicine mix. I am very frustrated because doctors do not seem open to sharing the best and worst case scenario and my learning has been up to me. I only want to be prepared but yet want a reason to continue to be his cheerleader. My motivation is running out as reality has finally slapped me in the face. Is there hope?

(Submitted October 31, 2005 16:44:42 by Claudia )

Guess I just need an outlet.After reading some of the other stories, I really should be grateful. My husband just turned 52 and according to Dr. has had several sm. heart attacks last one was Sept.28 th this year, not the usual signs he was sweating prufusly, cold and clammy, nausous, b/p was 54/45, My father had same symtoms only we didn't recognize until to late, this time I did and rushed him to the hospital. 24 hrs later they transfered him to another hospital where they tried and angoplasty, but couldn't get through the blockage ( this is what killed my father) so you can imagine what a basket case I was, 4 days later he has a quad by-pass done, 7 1/2 hrs later they say the surgury went well. But now one has said if he will every be able to work again, if life will ever go back to normal, what to do with all the medical bills,$100,000.+ no insurance, I don't know where to begin. I have always been a take charge person, you do what has to be done, just do it!! But now I cry at the drop of a hat, I'm not sleeping or eating, have had a couple of some kind of attacks at work where I get dizzy and almost pass out for no apparent reason, having nitemares when I do sleep. Is this normal? Is it ok to feel so lost and helpless this close to losing him? Or do I just need someone to kick my butt and say get with it and just do it!? Im so confused! Any thoughts? Any help?

(Submitted November 5, 2005 10:41:28 by Susan )

My 18 yr old son just underwent a heart transplant. He was complaining of chest pains and gettin short of breath many times. He also had pains go to his left arm. Doctor after doctor found nothing wrong from EKG's and the whole bit. We finally took him to Yale New Haven Hospital and they diagnosed him that the chest pains he was having were mild heart attacks and if he suffers another he would go into heart failure. Being told this by a doctor that my 18 year old son was going into heart failure was traumatizing.I was scared that I would lose my son. He suffered a heart attack the day after he turned 18 and we rushed him to the hospital were he was put on the donors list for a heart. We waited 1 month before a heart was found. A month of pain and suffering,laughter and tears. Mike made the best of what he could until he got his heart. The times when he was in too much pain was the hardest.The nights I'd look at him and feel hopeless,but then there were days when I saw him and he had a smile on his face. After his heart transplant seeing my son with 33 stitches in his chest was unbelieveable.I didn't believe that Mike just went through this. Within 2 weeks he was almost back to normal. He still is taking it easy but is back to basketball a little bit and can't wait for the season. Even though he is now on medications for the rest of his life, he still wants to live like an 18 year old lives. He tells me everyday that he's happy to be alive and if he could he wants to find out who the 19 year old male was who saved his life.God Bless!

(Submitted November 8, 2005 20:08:16 by ann )

i am 46 years old and last year i was hospitalized for enlargement of the heart but after awhile my heart's size came to normal.. last nov 1 i was rushed to the er due to 220 blood pressure and after that i was released but on nov 3 i was again rushed to the er because i was asleep and the phone rang and i was surprised! since then i was admitted until nov 8 i am treated for my diabetes and hypertension i am given half tab of valium, neo block once a day combizar once day and norisec for diabetes. i am so worried if i can still work, my work before is with a call center and i almost do typing jobs. can anyone tell me what to do and what food to take? thank you!!!

(Submitted November 8, 2005 20:30:32 by vicky taylor )

my husband (my greatest friend) had his 2nd heart attach 10-31-05 and he had 2 stents put in. they also informed us that jerry had went into deadly arythmia, and had manual cpr then the paddles used to revive him. he had a defibulator put in 11-3-05. i am scared to death, as so is jerry. we never recieved much literature on the ICD, and we don't know about recovery time, or what to expect. jerry is my soul-mate, i know that some people may not believe in that, but i truely do. i would just like to make him more comfortable, and more relaxed about this operation. if anyone has any input, please email me, i will never find this site again. thank you

(Submitted November 9, 2005 23:34:20 by Mary )

We have been told that my father is in the 3rd stage of heart failure. What is this? I know there are 4 stages but how long can a person remain in each stage? Please help me to understand.

(Submitted November 10, 2005 20:45:30 by EDWARD CERVANTEZ )

I HAVE BEEN HAVING SOME PAIN IN MY CHEST SOMETIMES IT FEELS LIKE A SHOT AND OTHER TIMES LIKE A SPASAM IT MOVES AROUND SOMTIMES ON MY RIGHT CHEST JUST BEFORE MY SHOULDER AND SOMETIMES UNDER MY CHEST. THIS HAS BEEN GOING ON FOR ABOUT 4 MO OFF AND ON. WHAT COULD IT BE. IWORRY ABOUT IT BEING A HEART ATTACK BUT AFTER READING SIGNS OF HEART ATTACK I AM NOT SURE

(Submitted November 13, 2005 01:40:41 by jenny )

I am 47 years old and I felt good up untill doctors told me i have heart failure and took all the test and started me on meds. I was heathy and on the go. Now since the doctor took over i dont feel good at all. I heard that i might have gone though all my life not knowing there was anything wrong and just injoyed my life.Now life sucks. I want to go back and not take any meds but now they got me so scared that if i stop taking them i well get bad really fast and possibly have a heart attack.Why do doctor think they know whats best for you and scare you into something you dont what??? I was just fine untill i went to the doctors. Now what do i do????

(Submitted November 14, 2005 21:32:57 by Connie )

Is any one new on the site? My husband needs a heart transplant, we don't know if that is really the right thing to do? Anyone have one?

(Submitted November 17, 2005 14:30:34 by glenda )

In April 2004 I had to have a triple by-pass and have a heart valve replaced. I have never been sick a day in my life up until this time. In January of 2004 I started feeling tired. I could get out of my car and walk into work and would have to rest before I could get to my office. Once I rested a little while I could go again. I went ot the Doctor the end of January and started undergoing test. I had all the heart test, lung test, and everything checked out fine. I was told I had a bad disk in my back so I started going to see a Chiorpractor(sp) I had began to feel like everyone thought I was crazy and making this up. Finally in April they did an MRI on my back and neck. The person who read the results made a note on the file that my heart was enlarged. I was told that I need to ask my doctor to do a cath, they did and told me I had to have the surgury the next day. I chose to get a pig valve so that I would not have to be on coumadin. I am 50 years old now and really feel like I have been blessed. I have had little or no trouble since my surgery. I am dreading the fact that I have to have my valve replaced in 10 to 15 years. Other than some weingt gain and a little worry from time to time I am fine. I had a lot of prayers and a lot of family support, without this I don't think I would have made it. I hope my story will help shed some light and help someone else. Thank You for the opportunity to talk about this. This is the first time I have done this....

(Submitted November 18, 2005 21:59:34 by Danielle )

Hi, my grandmother is 65 years old and she has a heart attack yesterday morning (nov.17). Today the doctors told the family that she has one completly blocked artery and the other two were nearly blocked. The are going to go in Monday and put a balloon in her heart to get ready for the work on Tuesday. They said they could not do anything for the blocked artery and they were not sure what they could do for the others. They are going to do what they can. I have no idea what all of this means all I heard was IT DONT LOOK GOOD! Please if anyone can help me understand please email me!!!

(Submitted November 27, 2005 17:48:18 by Dee Barker )

In 2000 I had a quad by pass done. Now all of my valves have gone from mild to moderate leaking,plus I was just told that I have a 4.something aneurysm on my aortic going into my heart. My doctor just sort of brushed it off and said not to worry about it but I am. What can you tell me about it. Thanks Dee

(Submitted November 30, 2005 14:20:22 by sylvia hurt )

hi to everyone it is a couple of years since i was on this site i am no further now knowing about my heart condition than i was four years ago what i do know is that my heart beats 115 per min and at times is faster i feel so ill i reckon the medical team has given up can anyone give me some advice thanks sylvia hurt

(Submitted December 3, 2005 01:32:15 by peggy dixon )

Hi - I just wanted to let anyone know there is hope for heart patients. my husband had a heart attack at age 25,he is now 43. he has cardiomypathy,which means his heart does not work at all,on bottom. he has defibrillator now,which shocks his heart into the correct rhytym,because his heart beats too fast,and at night, it just about stops. he was just diagnosed with bronchitis. he has continued to be active,as much as possible,and does not lay around the house thinking about it. i think it is his spirit and not willing to give up.,and his faith in God,when the doctors told him he had a five year survival rate. there is no help for his heart,but transplant and that really is not an option with his smoking.,so he lives his life to the fullest.

(Submitted December 3, 2005 01:54:00 by peggy dixon )

RE: TAKE YOUR MEDS,THEY MAKE YOU FEEL BAD,SOMETIMES,AND YOUR DEFIBRILLATOR: hello all,name is peggy. i should have waited and read all entries whiched touched me,before last post. I have been dealing with heart disease in my husband since he was 25,we had been married one year,he is now 43. he had heart attack at that age,then they found a blood clot,and finally his heart does not work right at all,resulting in arrythmia,which he has a defibrillator. It gives quite a shock,and try will send you to the ground. heart meds make you sleepy and dizzy,so till you get used to them,they will do this.,but these meds keep you alive. robert's heart attack was not treated right,so this resulted in damage,it is very important to get help immediately! learn cpr,as I have. Stay active if just piddling around house,this keeps up your morale and helps,keep fighting,and have faith in God! this is for a reason,if just to bless someone else! DONT GIVE UP, THIS IS NOT NECESSARILY A DEATH SENTENCE!

(Submitted December 10, 2005 21:02:54 by betsey ansin )

My Fiance, a senior citizen, just came home today after having had a stent placed in a blocked artery and is concerned because he still feels no better. Expected shortness of breath to quickly be gone. Can other people, patients or partners of patients, let me know what their experience was like? Thank you.

(Submitted December 14, 2005 18:59:34 by marie )

my daughter has a leaking aorta heart valve.her dr says its not bad enough for surgery yet.but now they are telling her that she has 4 flaps instead of 3 in her aorta valve.does any one know what caused this or is it dangerous.

(Submitted December 15, 2005 05:18:08 by Shailesh Dalvi )

I am 45 years male from Surat. I had a major heart attack on 2nd Dec-2000. Angioplasty with stent was performed on me on 13th Dec-2000 in LAD. I was comfortable for 2 years. After two years of plasty I started getting mild angina pain along with unexplained sudden tiredness. Again angiography was performed on me at Asian heart institute Mumbai in the month of Sep-2004 and three artories were found blocked . My cardiologist has suggested to go for Bypass surgery. It took place in the same hospital on 11th Sept-2004. I have completed thirteen months after bypass surgery. I have undergone six months and one year medical check up. My ECO and stress test were normal. Echo is showing 48 % LVEF and stress test was negative at 100 % of targeted heart beats with 14 METS work load. I walked for 12 Minutes. But I am not getting Normal feelings since begining after operation. I am having chest discomfort with mild short > of breath and tiredness/fatigue for whole day. My blood reports ( Hemoglobin, Thyroids, B12, Glucose , HIV etc ) are normal. I have done my chest CT scane. That is also normal. After bypass I was complaining same symptoms but it was ruled out by cardiologist that it will go gradually. Now I have completed thirteen months and symptoms are there with me. I can walk without angina pain for three Kmtrs but I always> have chest discomfort for longer period after mild exertion. Tiredness and fatigue remains for whole day. What is the reason ? Is it due to again reblockage ? Shall I go for again angiography to rule out this ? Shall I need more medicine to relieve from this symptoms which loosing my concentration on work ? Please advise. My medicines are > Dilzem 30 1-1 > Betaloc 25 1/2 (Half) > Ecosprin 150 1 > Zyrova-5 1 > Nicorane-5 1 > My other history > > No diabetise > No hypertension > No smocking > No Alcohol > Family history for heart disease YES > Quintuple ( Five grafting with memory and radial artery) Bypass surgery on me. > Weight 64 Kgs > Height 173 Cms. Looking forward to hearing from you. >

(Submitted December 17, 2005 23:33:16 by Bruce Yarrington )

Where do I start? I am 55 years of age & have been a heart patient since 1984 when I had a massive MI ay age 34 while on duty as a detective. Since then I endurred another four MIs which eventuallu led to a quad bypass in 1993. I did well til 1998 when I went into CHF and also discovered that I had mitro-valve prolapse. What a shock. I had so much pent up emotion of helplessness & still do to this day. Since 1998 my EF has decreased significantly to below 30% now. 80% of my heart muscle is dead tissue, my left ventricle function is about 30%, snd I was just informed last week by my cardiologist after having an electrocardiogram that I'm in danger of sudden death syndrome. I was told 1 & 1/2 years ago to expect this and that due to the fact is so damaged I am not a candidate for any life saving re-bypass surgery. My cardiologist recommends that I have a defribullator inplanted to prevent the SDS. This of course will only prolong the inevitable which is death from CHF (drowning). My sons want me to have the defib, but my wife tells me it's up to me and my decision what to do. I asked her why she felt this way and all she could say was that she just wants me to stop suffering. I'm so confused and she won't address the issue. Is she in denial or just tired & resigned to the fact of my inevitable death? I know I've said many times that I'm tired of being tired! I'm tired of being sick, When will it stop? I also pray to God for answers every day. Just needed to share. Thanks for listening to me.

(Submitted December 19, 2005 14:33:28 by Chris )

I am searching for support either here or in person, my husband is dying from CHF and we are on Hospice. Caregiving can be hard and I need help at times.

(Submitted December 21, 2005 11:31:47 by Lori Cawley )

Just found out last week that my 16 yr. old son has mitral valve prolapse with mitral valve regurgitation, tricuspid valve regurgitation, and pulmonic valve regurgitation, and he has pulmonary hypertension. The drs. don't want to do anything except watch and see. My son was hospitalized 2 years ago with severe bradycardia. The drs. said it was hypothyroidism. The meds have helped that condition. However the drs. never said anything about leaking valves. I went the other day and got the records from the hospital from 2 years ago and it says on the echo report that my son had tricuspid valve regurgitation! I was never told! Now 2 years later, this echo revealed all the other valves that I mentioned above and the pulmonary hypertension. Is this a result of not following up on the tricuspid valve 2 years ago? I don't know what to do. I am not a dr. but it seems to me that someone dropped the ball. Any thoughts would be appreciated. Thank you.

(Submitted December 28, 2005 00:23:20 by Vickie Reedy )

My father is 79 and 3 weeks underwent double bypass surgery. He has been in a rehab facility undergoing physical therapy. We anticipated him being released after 2 weeks, but were told that he has at least 2 more weeks of p.t. before they will release him. He is so desparate to get home that he is doing all that they ask of him. We are concerned that the p.t. staff has too high of expectations for him as they expect him to have more strength and stamina. Is is unusual for a patient to stay in a physical therapy nusing facility for more than 2 weeks after bypass surgery? Please write if you have any experience with this situation. Thank you and God Bless.

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